Healthcare Author & Editor • 9 books in Gillette Children's Healthcare Series (incl. Cerebral Palsy, Scoliosis) and "Pure Grit" • CP advocate • HSE Board member
Joined April 2008
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Congrats to Ruthie and what a great graduation speech. Thanks so much for posting ❤️
I’ve been on this site for almost 16 years and for many, if not most of them, I’ve posted quite a bit about Ruthie and what it’s been like to raise a kid with a disability. I’ve been pretty quiet lately, but yesterday, she graduated from high school and was selected to give one of 3 student speeches. Here is hers (sorry it's 8 min). I keep learning so much from this young woman. I don’t expect that will change…
Great piece, well worth reading. This Working Life: ‘If it wasn’t for my daughter, I might never have found real career purpose’ independent.ie/business/in-t…
An important day for those living with cerebral palsy in Ireland.
Dr @jennifer_m_ryan @CPLife_Centre , welcomes delegates to the launch of the National Cerebral Palsy Register “The past, present and Future of Cerebral Palsy Registers in Ireland @RCSI_Irl @RCSI_Physio @noca_irl @yourcpf
Lily Collison retweeted
Well worth listening to @KathleenMacM & @roisiningle discuss why the naming of Mary Lavin Place at Wilton Park is so important. ✍️Open to the public from this afternoon as well as the newly restored one-acre Victorian Park. Meticulous work from @IPUT_plc 👏 #marylavinplace
New Episode
Tomorrow, Mary Lavin Place will be officially unveiled in Dublin, the first public space to be named after a female Irish writer. Lavin’s granddaughter @KathleenMacM reflects on her life and legacy.
In association with @KildareVillage
pod.link/1040117877
Great article by @paddyod_97 in today's Sunday Times. @yourcpf @jennifer_m_ryan @collision @tommycollison
@alisonoconn
"An aircraft doesn’t know any prejudice, it treats me like anyone else”
“I worked so hard on my motor skills that I don’t need any special tricks or features to fly an aircraft”
"flying allows him to transcend ... physical limits"
And many more great lines
A qualified pilot with cerebral palsy says that flying an aircraft is one of the only things he can do without any difficulty and that it is the only time when he feels truly free.
Thanks to @lilycollison for contributing to this piece.
thetimes.com/article/809293a…
Lily Collison retweeted
This is a big idea! Up to 350k high quality sustainable homes where they're needed most. And help for homeowners. A true win-win.
Today, we are launching @ProgressIreland’s first housing policy.
Solutions can be overlooked when nearby – even in our own back gardens.
I want to tell you about how allowing homeowners to build a home in their gardens could unlock hundreds of thousands of new homes.
Working with great teams in Ireland to improve cerebral palsy care @yourcpf
thecurrency.news/articles/15…
Lily Collison retweeted
Our research shows the challenges that adults with cerebral palsy in Ireland face to access health services
We highlight these in a new article by @jenfortune1 @Manjula_M_K_N @itsme_eabha @upmovement_cp
irishtimes.com/health/your-w…
Green with pride as Leinster House is lit in green for National Cerebral Palsy Awareness day @yourcpf
On National Cerebral Palsy Awareness Day, I'm proud to be Irish seeing the lighting of buildings in green, the colour of CP Awareness.
Approx 150 babies receive a CP diagnosis in Irl each year. 3,000 children/adolescents and 9,500 adults are living with CP in Ireland.
First pics in from @UCC
Lily Collison retweeted
💚💚💚 National CP Awareness Day!
Did you know there are 12,500 people in Ireland with CP and 17 million worldwide?
In4kids with @yourcpf & Irish Hospitals aim to reduce diagnosis age to < 9 months. Read more about our work: in4kids.ie/cpfandin4kids-cp/ #cpawarenessday #cpawareness
Today is National Cerebral Palsy Awareness Day! Our Ireland Programme of Excellence has been incredible over this past year, so we put this together to celebrate part of our community! 💚 #GoGreen4CP #CerebralPalsy #NationalCPAwarenessDay #Ireland
Lily Collison retweeted
Our mum, Alice Flanagan, proves age is just a number (def > 80!), winning 3 golf competitions this week in Rosses Point @IrishGolfDesk @CountySligoGC @CountySligoGCL @kpaflanagan @smnflanagan @ShaneFlanSligo @flano7 – at Sligo, Ireland
Lily Collison retweeted
At @in4Kids_ie we are delighted to support this very important body of work. We look forward to continuing research in this area &improving outcomes for children with CP in Ireland.
@yourcpf @_TheNMH @CoombeHospital @RotundaHospital @hrbireland @HRB_NCTO @IrelandSouthWID
📰Cerebral Palsy: ‘It is tough hearing that news, but it is far tougher when you have to fight for the best care for your child’
👉The Irish @yourcpf programme of excellence, which launched last year aims to achieve diagnosis within 3 months.
irishtimes.com/health/2024/0…
Thanks Brigid but it takes the village! @Maryknowsbees @yourcpf @jennifer_m_ryan @demurray @gastaut @mrjimfkennedy and many more. With all of us – parents, ppl with CP, medics, researchers, donors, politicians & policymakers working together, Irl can lead the world in CP care.
Amazing work by @lilycollison - who kickstarted the Irish Cerebral Foundation programme . Early diagnosis and better clinical care the aim. In @IrishTimes & @marymccarty today
Lily Collison retweeted
As someone with cerebral palsy who had the right surgery at the right time, I’m grateful to my mum @lilycollison for writing this piece about why more kids with CP deserve access to these treatments. independent.ie/opinion/comme…