Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016.
Chicago, IL
Joined October 2018
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Every flag has a name and the three letters ALS written on it. 6,000 flags! #endals
lori andre retweeted
Sometimes it is the quietest power that brings a ray of hope to the room. #EndALS #SundayMorning – at Nashville, TN
To the Project ALS Family: We are proud to announce that prosetin, a novel ALS drug candidate developed at the Project ALS Therapeutics Core at Columbia, has been acquired for commercial development by a new company, ProJenX. Read the press release here: prn.to/3JtRymM
lori andre retweeted
what an incredible community this is. big thanks to @SteveMadden @loriandre3 @CarolineTredwa1 Brian Andre, and all of the people behind the scenes for a beautiful event and daily commitment to @iamalsorg’s mission.
It's a beautiful day for 18 holes, and the 3rd annual Cobbler Classic Pro-Am from @SteveMadden is underway! We could not be more grateful for Steve, his team, and their generosity of time and spirit as they put on this amazing fundraiser year after year.
Found this yesterday on the beach. Life is so precious and the ALS community is reminded of that every day. This was a difficult few days for the ALS community, and I can’t help thinking about what @kelsieswrites said, “ hug your people”.
Today, I’m proud to share an exciting new resource that I helped build — Roon — an invaluable guide for people navigating ALS. Check it out:Roon.com.
Shout out to the flight attendants on @united flight 2008 from Chicago to Atlanta. The crew was exceptional. Bravo!
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Meet the woman who’s determined to show the world what it is really like to live with ALS by sharing her journey on social media with grace and laughter. @SavannahGuthrie shares her story.
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Did you know that 32,000 Americans are living with #ALS?
Beside each of those 32,000 patients are care partners, family, and friends who want a better future for those who hear the words, "You have ALS."
We're working to create that future. Will you join us?
#alsawarenessmonth
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When living with #ALS, there are many assistive devices and strategies that can help you transfer safely either with or without caregiver assistance. Watch how-to videos and learn more on our new Transferring page: youralsguide.com/transferrin…
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In today's blog post, Dr. Geraldi Samara (@DGeeEss1) discusses anxiety, a widely experienced but little discussed symptom associated with #ALS.
synapticure.com/blog/creatin…
lori andre retweeted
Hey Chicago White Sox Fans! 52 Days until the 3rd Annual Lou Gehrig Day! Come join us for another amazing day! @iamalsorg @loriandre3 @ALongSwim @DrOzdinler @LesTurnerALS @AndreaBackman05 @annemcintosh241 @conniembecker @sairysays @joshvons
iamals.org/join-us-for-lou-g…
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For those who could not make it, the recording of last week's ARC Town Hall is now available on our YouTube Channel. For those who attended, what did you think? Comment below and share the video to help us spread the word about ARC. als.net/als-town-hall/archiv…
lori andre retweeted
Join @limpbroozkit and I next week as we chat about Family & ALS with @youngfacesofals 🤗 #heralsstory #youngfacesofals #knuckleheads
Posted @withregram • @youngfacesofals Although family dynamics are always different, one thing most of us have in common is wanting to find
lori andre retweeted
ALS TDI is thrilled to announce the launch of the ALS Research Collaborative (ARC) – an ambitious global initiative developed to significantly accelerate the discovery of ALS treatments. Learn about how you can be a part of ARC at als.net/news/als-tdi-unveils… #ARC #ALSresearch #EndALS
lori andre retweeted
*ALS life*
A post from 12 days after I was diagnosed with ALS (2021). It took almost 3 years to officially say what I already knew. 1 year after diagnosis I started Toferson. I can't help but wonder if my 1st or even 2nd doctor took me serious about ALS, where would I be today?
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Sometimes patients ask us what it means when we say that we work hand-in-hand with their existing care teams.
It's a fair question--so, @DGeeEss1 wrote a blog post demystifying the process.
synapticure.com/blog/the-art…
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"Speed."
"Hope."
"Discover."
"Something new."
We think we're onto something when patient feedback sounds like this.
lori andre retweeted
The services of the multidisciplinary clinic are irreplaceable. But they also don’t need to only be accessible in the clinic or all together at one time. Digitally led outpatient care is already dramatically improving care quality in every major disease, filing gaps in care.
