Liver transplant recipient for PSC. Programme Development Officer @PSCSupportUK. Freelance Dance Practitioner. All views mine. BE AN ORGAN DONOR! @NHSOrganDonor
Somerset, UK
Joined December 2011
- Tweets3.8K
- Following382
- Followers468
- Likes7.1K
Pinned Tweet
10 years ago today, we went on our first date.
5 years & 6 days ago Josh walked me down to theatre for my liver transplant.
2 days ago we got married in front of all the people we love.
Without my donor & his family & the incredible NHS staff this wouldn't have been possible 💝
Maxine retweeted
Proudly supporting the PSC Patient Conference in Oxford 30/09/23 Expert speakers covering a range of vital topics for PSC patients including latest research in #primarysclerosingcholangitis, #livertransplantation, living with #PSC @PSCSupportUK pscsupport.org.uk/events/
Maxine retweeted
No training updates as damaged my ankle ligaments few weeks back, so no course records under threat next month, but I will get round. Have a read...
justgiving.com/page/joshross… @pscsupport
Maxine retweeted
We're committed to establishing a pathway towards finding a cure or effective treatment for PSC by 2030. We'll fund more PSC research than ever before, offering over £1 million in grants to researchers. We need YOU to join our mission & donate today: bit.ly/3LQMdu7
Maxine retweeted
Talking at the @PSCSupportUK information day. Amazing turnout!
@F8Martine speaking now: a world class advocate for everyone living with PSC
PSC is still the greatest unmet need in modern liver medicine.
@basl_events @EASLedu @BritSocGastro
Maxine retweeted
ONE MORE SLEEP! Our first Information Day of 2023 is less than 24 hours away 😁 @CholestasisDoc
🚗 ✈️ 🚋 🚌 If you're attending, safe travels!
If you're on the waitlist for a place, PLEASE keep checking your emails as places often come up right at the last minute!
Maxine retweeted
Do you want to help improve the lives of people affected by PSC this Christmas? Fundraise for PSC Support by holding a Christmas cake sale, offer a gift wrapping service, or donate when you shop online. We've got festive fundraising ideas for all 👉 bit.ly/3XViXpR
Our brilliant and very dedicated team ⭐
#TeamPSC at work! Trustees, staff and volunteers came together yesterday to work on the charity's strategy and there was a strong focus on research🔎
A huge thanks to @MEDiSTRAVA_Cons for hosting us.
#LetsBeatPSC
Maxine retweeted
What a cracking day! 🫶🏻💪🏻 Trustees, staff and volunteers at our @PSCSupportUK Strategy Day coming together to plan important work to tackle PSC with @MEDiSTRAVA_Cons 🙏🏻
Maxine retweeted
"But you don't look ill..." Tips for patients on handling a diagnosis of PSC and living as well as possible with PSC 👉 pscsupport.org.uk/so-you-hav…
Maxine retweeted
As we start #OrganDonationWeek please meet Gareth who received a #LiverTransplant this year. The difference #OrganDonation makes is clear to see in the photos of Gareth with his daughter draped around his shoulders before transplant, and since ❤️
facebook.com/308381019644605…
Maxine retweeted
Join us live on Facebook at 1pm on Saturday October 1st with Dr Jessica Dyson for Ask the Expert. Dr Dyson's research focuses on looking at how the environment could be involved in the development of autoimmune liver diseases like PSC.
Maxine retweeted
So powerful to hear the carer's story. Important lessons for all of us involved in looking after patients with advanced liver disease. #Communication #Dignity Strong #relationships.
Thanks for organising this excellent session @livernursing @BASLedu #basl2022
Congratulations to @katiesramos and @swlb for setting up & running a fantastic patient support group at Derriford Hospital. A prime example of patients and HCPs working together to improve patient care and provide peer support which is so vital for many. #BASL2022
Come say hello and chat about #PSC if you're at #BASL2022 today. Extra points if you're wearing your @PSCSupportUK badge!
This week, liver doctors, nurses and researchers are meeting at the @basl_events Annual Meeting in Leeds. @maxceline_ is back from maternity leave and flying the flag for the PSC community 🎉. It's a great opportunity to talk abut PSC! #LetsBeatPSC
Maxine retweeted
Fascinating talk on imminent research in #psc great to see the importance of patient engagement recognised @maxceline_ @F8Martine @PSCSupportUK
Simon Rushbrook and Shahid Khan talk about cholangiocarcinoma in #PSC and a very exciting new trial they have just secured funding for. @PSCSupportUK are very pleased to be part of the PPI group. Involving patients in research from the very start = 👍 #BASL2022 #LetsBeatPSC
Maxine retweeted
It's #OrganDonationWeek next week. If you've had a liver transplant for PSC, help us build awareness of the incredible difference #OrganDonation can make by sharing your story. Get in touch with us by dropping an email to [email protected] 🙏 #GiftOfLife
Maxine retweeted
Wear one of our badges with pride! Go and pick one up from @maxceline_ at the @PSCSupportUK stand at the @basl_events - oh and get our PSC Alert Cards and 'Guide to Clinical Trials' booklets too 🙂
Thanks for championing PSC @CholestasisDoc, @TheBileDoc @RajivJalan1 🙏 @BASLedu
Maxine retweeted
PSC Support is looking for a Chief Executive to lead the day-to-day running of our charity and deliver on the strategic goals set by our Board of Trustees. Find out more 👉pscsupport.org.uk/we-are-rec…
