Miriam Martin (@mirmrtn) profile picture

Interested in rare diseases & MH Lives with syringomyelia, spina bifida occulta, scoliosis & associated cndts. Chair of SACA (volunteer) My views are my own.

Belfast via Co Louth, Ireland
Joined February 2016
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Syringomyelia Arnold Chiari Association (SACA) is a Northern Ireland registered charity. We provide information and support to families living with Syringomyelia and Chiari Malformations. Helpline 078 26 004 008 [email protected]
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There’s no doubt Encompass has utterly changed how care is delivered in hospitals in NI. We were recently told that there was an unexpected cost of Encompass of an additional £20m this year. There are unanswered questions about how much Encompass will cost in total and why.
🏥 The Health Minister visited the Ulster Hospital in @setrust to see how Encompass is helping to transform health and social care 💻 Minister Butler saw the children's ward, as well as the Control Room and Discharge Hub and how Encompass works across the different areas.
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Fond memories of those weekly gigs in the Baggot Inn around that time too, Christy Moore & friends later named Moving Hearts. You dare not talk either! You went for the music. RIP Donal what a talented man.
Wednesday nights Baggot Inn, Dublin 1981, a new group had just formed made up of already known Irish music super stars… Christy Moore, Donal Lunny, Declan Sinnot, Davy Spillane, Eoghan O'Neill, Brian Calnan and Keith Donald the band Moving Hearts.. they were magical, RIP Donal
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I'm sure the closing of numerous Phone First services won't help but gotta keep making those brutal cuts I guess. #StormontAusterity
A&E bosses in Northern Ireland have called for government action to prevent “an utterly brutal winter”. The heads of almost every emergency department (ED) here are “very” or “extremely” concerned about winter pressures, according to a new survey. belfasttelegraph.co.uk/news/…
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Miriam Martin retweeted
Constructive discussion today with @allianceparty Belfast City Councillors about lessons from the Fleadh and potential future pedestrianisation of the City Centre.
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Worth reading, esp those who talk about cross border healthcare & Irish health service, HSE as though it's superior to NHS, granted in NI we too are far behind most English health trusts in terms of what's available in NHS. North and South needs much more investment in health.
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Option to pay for Covid booster may not be available! Boots website saying 'If you are not in one of the eligible cohorts, please do not book an appointment as you will not be able to receive the vaccination' My lung function may be =to 80 yo, but I'm not 75 nor immunosuppressed
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Miriam Martin retweeted
Today’s Goldliner 273 journey was a disgrace! Trapped on bus for 30 mins due to faulty lift. Return journey had blocked wheelchair space and my unsecured wheelchair sliding around bends. I've asked for years. Now I DEMAND low-floor buses. No more excuses! #Disabled #Disability – at Golan, Northern Ireland
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For anyone who needs a giggle today 🤣
“Apparently, the FC wanted a nice photograph of me smiling. So I gave her my best customer service face. She’s now booked me onto a course in conflict resolution and public relations. Personally, I think I look approachable. In a ‘your treats or your ankles’ sort of way.
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Do you know someone who received a diagnosis of a #Chiari Malformation, or #Syringomyelia or a #Syrinx in Northern Ireland? All uncommon, linked brain/spine conditions. Come to our SACA event at Voco Hotel, Belfast on Sunday a'noon 11th Oct, for info & support #KnowledgeIsKey
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Flu vax this a'noon & I'm uninstalling twitter app from phone to stop me getting distracted, lots to do ahead of S.A.C.A. AGM, I'm an 11th hr person 🫣 @LibrariesNI Mindfulness on Mondays are worth checking out if you're overwhelmed these days. Yest session had us singing 🎶 😀!
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It's that time of year again, shout out for our SACA charity AGM, coming up on Sunday 11th Oct in Voco Hotel, Belfast from 1.15pm Meet others living with #Chiari and #Syringomyelia - find your tribe in here Northern Ireland. Join us!
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Please educate yourselves about sepsis today. #WorldSepsisDay
Today is World Sepsis Day. Sepsis is a life-threatening reaction to an infection which needs urgent treatment in hospital. It can be hard to spot, so make sure you know the symptoms. ⬇️
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World Sepsis Day today 13 September Please educate yourselves about this deadly illness. I too survived urosepsis thankfully, but I know of several people who weren't so lucky :( Thanks Rebecca for sharing your story. #sepsisawareness
“It felt as though my body was shutting down.” Radiographer Rebecca Pennington became seriously unwell with urosepsis aged 28. Now aged 40, she's sharing her story to remind others that sepsis can strike anyone. 🔗sepsistrust.org/sepsisvoices…
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You might know that sepsis is a serious condition, but were you aware that it is a reaction to an infection, and that it can be life-threatening? 📱For more information, including symptoms, visit the NHS website. 🔗 nhs.uk/sepsis #WorldSepsisDay #SepsisAwarenessMonth
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Miriam Martin retweeted
Today is World Sepsis Day. Sepsis is a life-threatening reaction to an infection which needs urgent treatment in hospital. It can be hard to spot, so make sure you know the symptoms. ⬇️
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Right now Dermot and other disability allies are assembling at Parliament Square as the Assisted Dying Bill is debated. If you haven't written to your MP asking them to vote no, it's not too late. Insufficient palliative care in NI, AD cannot be the option. #NoToAD #VoteNo
Arrived in London for the Vigil outside Westminster tomorrow, during the Assisted Dying Bill debate. I'm asking MPs to Vote No. #VoteNo #NoToAD #Disabled #DisabledLife #DisabledActivist
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Living w/progressive neuro cndts means every trip requires planning & effort, we didn't turn up here yesterday for fun! We need help now, not more reports! Left Behind: The Price of Inaction on Neurology Reform Read the full report: shorturl.at/YnZ5v @RobbieButlerMLA
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N.B. I'm in favour of NINCA's report, highlighting "The economic case is undeniable: the research estimates that every £1 invested in reform could potentially generate up to £66.85 in avoided economic costs." It was the DoH response to BBC Newsline - another report!
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