FSHD NEWS over the world. Research and patients networks #FSHD #CureFSHD #WorldFSHDDay = June 20th
Europe
Joined February 2016
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FSHD News retweeted
Thank you to everyone who joined us for the 2025 International Research Congress & the Industry Collaborative. The festivities are not over! This weekend also includes the inaugural FSHD EU Connect Conference & the Project Mercury Global Task Force meeting.
#FSHD #FSHDResearch
FSHD News retweeted
💪 Scientists with Dr. Oscar Horwath at @orebrouni suggested that combined exercise training elicited beneficial muscular adaptations without impairing important indicators of skeletal #muscle regenerative capacity in patients with #FSHD.
👉 @JPhysiol | bit.ly/4hIhwnH
FSHD News retweeted
Systemic delivery of a DUX4-targeting antisense oligonucleotide to treat facioscapulohumeral muscular dystrophy
👉 10.1016/j.omtn.2021.09.010
#DUX4 #FSHD #AntisenseOligonucleotide #MuscularDystrophy #TherapeuticStrategy #MusclePathology
FSHD News retweeted
Celebrate World FSHD Day on June 20 with an Orange Slice Selfie! Head to our website for post ideas, suggested text, and a full toolkit of resources! 🧡🍊
fshdsociety.org/world-fshd-d…
#CureFSHD #WorldFSHDDay #Neuromuscular #FSHD #RareDisease #FacesOfFSHD
FSHD News retweeted
We are excited to announce promising preliminary data showing SAT-3247 can improve skeletal muscle function in a mouse model of facioscapulohumeral #musculardystrophy. We plan to present the data at the 2024 #MDAconference.
ir.satellos.com/news/news-de…
#FSHD $MSCL $MSCLF
FSHD News retweeted
Are you living with FSHD?
Are you working with people with FSHD in the UK?
Help us understand UK care and service provision for FSHD by answering our survey so that we can establish what best practice looks like and future care packages can be better developed. Info below 👇.
ALT (NB: We only require one person to respond on behalf of the team so please feel free to discuss this with your wider team).
FSHD News retweeted
We are hiring ! A post position (18 months in first instance) is open to develop therapeutic approaches for #FSHD is our lab. Get more information here: ucl.ac.uk/work-at-ucl/search…
FSHD News retweeted
By mid 2023, there will be 3 candidate drugs in Phase 2 or 3 clinical trials. Nearly 20 companies have an FSHD drug development program. How did we come so far so fast? We used our leverage.
Learn how we optimize your investments in our blog: fshdsociety.org/journey-to-a… #CureFSHD
FSHD News retweeted
Please share with your networks who might be interested in attending! Additional engagement days at other sites in the U.K. to be announced soon #fshd #musculardystrophy
FSHD News retweeted
Interesting new #FSHD #CellDeathDisease paper: Non-myogenic mesenchymal cells contribute to muscle degeneration in facioscapulohumeral muscular dystrophy patients. tinyurl.com/2b9csm59
FSHD News retweeted
We are pleased to announce the enrollment of the first patient in REACH, our Phase 3 clinical trial of losmapimod for Facioscapulohumeral Muscular Dystrophy (FSHD). Learn more here: bit.ly/3AmbFSG
Find out where our trial sites are: bit.ly/3NLl09D
#fshd
FSHD News retweeted
A big congratulations to @SaeedAnuj on the @WCHRIUofA Award! With this support, he is developing antisense oligonucleotide therapy for facioscapulohumeral muscular dystrophy (#fshd) one of the most common forms of muscular dystrophy. wchri.org/members-and-traine…
FSHD News retweeted
Meeting Minutes | Online Live Broadcast of the 3rd China FSHD Conference and Medical Seminar was successfully held fshd-china.org/page176?artic… #FSHD
FSHD News retweeted
Last night we officially kicked off #FSHD CONNECT with the opening reception, sponsored by Fulcrum. Patients, researchers, and clinicians connecting and collaborating.
Today we’re off with morning breakout sessions in person and afternoon sessions online.
What a weekend!
FSHD News retweeted
You still have time to buy a t-shirt and receive it in time for World FSHD Day! Get your World FSHD Day t-shirt now to get ready for June 20th!
Find the shirt options here. The FSHD Society does not receive any proceeds from the sale of this merchandise. bonfire.com/store/fshd-socie…
FSHD News retweeted
Congratulations to C Himeda and P Jones for their review on FSHD Therapeutic Strategies: What Will It Take to Get to Clinic? mdpi.com/1647412 #mdpijpm in our special issue mdpi.com/si/101065 #FSHD #NMD
FSHD News retweeted
面肩肱型肌营养不良症：“FSHD小飞侠” 线上系列课项目持续4个月，5月20日正式启动，直播课支持回放。{第一期}“中国面肩肱型肌营养不良症的临床队列研究”-福建医科大学附属第一医院神经内科主任医师王志强教授。#FSHD
FSHD News retweeted
We have some resources to help if you experience "foot drop."
Freedom through AFOs fshdsociety.org/2018/12/10/f…
A personal story about using AFOs fshdsociety.org/2018/08/22/m…
#fshdsociety #curefshd #strongerthanfshd #facesoffshd #fshd #doctorsofinstagram #rarewarrior #musculardystrophy
FSHD News retweeted
These are some common signs of FSHD. Have you experienced any of these? Muscle activation exercises can be beneficial. Visit our Exercise YouTube playlist for ideas: youtube.com/playlist?list=PL…
FSHD News retweeted
MyFSHD podcast with Dr Peter Jones and Chip Wilson re: $100M investment and @SOLVEFSHD
Apple:
podcasts.apple.com/ca/podcas…
Spotify:
open.spotify.com/episode/6Wz…
#nmd #fshd #solvefshd #musculardystrophy
@mpcfshd @FSHresearch @FSHD_Leiden @FSHDCanada @FSHDSociety @FSHD