Paediatric dermatologist
Joined August 2012
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- Following346
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- Likes1.5K
Veronika Dvorakova retweeted
Join Team NF Ireland for the Vhi Women’s Mini Marathon 2025💙
Walk, jog, or run with us on 1st June 2025 in Dublin and help raise vital funds for NF Ireland.
🎽 Sign up & get your fundraising pack today.
📩DM us or email [email protected] for the registration link💙 #NFIreland
Veronika Dvorakova retweeted
🎉Exciting news! We are proud to welcome young doctors as third representatives across our Rare Disease Working Groups. These passionate professionals bring fresh energy to improve patient care.
Read more👉bit.ly/4a78aiV
#RareDiseases #VascularHealth #MedTwitter
Veronika Dvorakova retweeted
👶 What should you do if your baby’s #InfantileHemangioma ulcerates? We’ve got expert-backed DO's✅and DON'Ts❌to help your baby heal safely.
Swipe through to learn more, and download the full factsheet here➡️bit.ly/4gA1yMh
#RareDiseases #InfantCare #VascularHealth
Veronika Dvorakova retweeted
🩺Kaposiform Hemangioendothelioma (KHE) is rare, but expert #care shouldn’t be. Our new patient pathway provides step-by-step guidance for #diagnosis & #treatment to improve care outcomes.
👉 Access now: bit.ly/KHEpathway
#RareDisease #VascularHealth #PatientCare
ALT An infographic detailing the diagnostic work-up overview for Kaposiform Hemangioendothelioma (KHE). It outlines visible and nonvisible lesions, characteristics like Kasabach Merritt Phenomenon (KMP), and key diagnostic steps including blood tests, imaging (doppler ultrasound and contrast-enhanced MRI), and biopsy recommendations. The image is color-coded with sections for clinical evaluation in blue and investigations in yellow. Includes VASCERN and European Reference Network logos.
Veronika Dvorakova retweeted
💙 Ever felt alone on your health journey? The 2nd Edition of the VASCA Magazine is here to remind you that you’re not.
Read it on our website ➡️ vascern.eu/app/uploads/2024/…
#RareDisease #VascularAnomalies #PatientStories #HealthCommunity
Veronika Dvorakova retweeted
What a journey at #VASCERNDays2024! Day 2 brought case discussions, impactful RDWG sessions, & our ePAG representatives discussing patient-centered care.
A big thank you to all who joined us in person & online! 🙏 Together, we’re building a stronger foundation for vascular #raredisease care across Europe. Stay tuned for our article on #VASCERNDays2024!
Veronika Dvorakova retweeted
Veronika Dvorakova retweeted
#ResearchHighlight: Our VASCA Working Group paper on the diagnosis and management of #VenousMalformations offers expert consensus patient pathways to help clinicians toward efficient diagnostics and management of patients. Give it a read👉bit.ly/49BZW0X
#rarediseases
Veronika Dvorakova retweeted
📽️#Throwback to our insightful webinar on managing Severe & Rare Infantile #Hemangioma. Learn about key 'red flags‘ & management and follow-up recommendations. A vital resource for clinicians treating this rare condition. Watch & learn➡️ bit.ly/48k2VKa
#rarediseases
Veronika Dvorakova retweeted
Due to an ongoing incident in Parnell Square, patients are advised not to travel to the hospital this evening unless absolutely necessary.
The hospital is fully operational at this time.
Veronika Dvorakova retweeted
#ResearchHighlight Promising Sirolimus treatment breakthrough for life-threatening head and neck lymphatic malformations. This study offers hope for improved quality of life.
Read more here👉 bit.ly/498Fghx
#MedicalResearch #RareDisease
#LymphaticMalformation
Veronika Dvorakova retweeted
📚Calling all medical students & interns in #European universities! The 1st edition of the #VASCERN Summer School is here. This Summer School offers a unique hybrid format with on-site classes in Paris.
📅 Deadline to apply: Nov. 19, 2023
ℹ️ More info: bit.ly/3RKD0Xs
Veronika Dvorakova retweeted
📢 Exciting news! Discover our essential do's and don'ts for managing severe/rare infantile #hemangiomas.
It is a must-read, packed with valuable insights to help parents and caregivers navigate managing this disease confidently.
Download and share➡️ buff.ly/446Q64D
Veronika Dvorakova retweeted
David O’Donovan – brilliant reconstructive surgeon was held in the highest regard by colleagues and patients alike irishtimes.com/obituaries/20…
Veronika Dvorakova retweeted
🙌We are incredibly proud of the #patient advocates from our Vascular Anomalies working group! Their abstract on the VASCA magazine has been published in the Orphanet Journal of Rare Diseases @ojrarediseases.
Click the link to learn more👉buff.ly/3P2g8RV
#sharecarecure
Veronika Dvorakova retweeted
Veronika Dvorakova retweeted
May is NF Awareness Month, a time for the NF community to harness their power, drive awareness & educate those around them.
This year we will be organizing meet ups in Dublin and Cork, having a publicity campaign & lighting up buildings across the country in blue and green.
Veronika Dvorakova retweeted
Stay informed!📚
Dive into the special issue on the European Journal of Medical Genetics from #VASCERN with insightful articles from our rare disease working groups.
Get ready to learn something new!
#KnowledgeIsPower #rarediseases #rarediseaseawareness #medicine #research
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Veronika Dvorakova retweeted
The VASCA winter #meeting in Brussels was wonderful!
Read our latest #article to get all the info and the highlights from the meeting! Click the link for more ➡️ buff.ly/3jLONpC
#vascularanomalies #RareDisease #events #news
Veronika Dvorakova retweeted
Patient Pathways are important tools for defining the best care for #patients
Watch our expert explain the patient #pathway on venous #malformations in detail and achieve proper #diagnosis.
Click the link ➡️ buff.ly/3GZ686m
#MedTwitter #vascularanomalies #RareDisease
