RareDNA Foundation

6 days left to support our 10 day Impact for Rare research!  We just need 40 people to give $20. Is that you?  #RareDNA #PPA2 #RareDisease #ResearchMatters Donate here:  paypal.com/US/fundraiser/cha…

6 days left to support our 10 day Impact for Rare research!  We just need 40 people to give $20. Is that you?  #RareDNA #PPA2 #RareDisease #ResearchMatters Donate here:  paypal.com/US/fundraiser/cha…

DAY 2: 10 DAYS TO MAKE RARE MATTER! PPA2 is an ultra-rare genetic disorder that can cause life-threatening heart complications. For families like ours, research means hope. 10 Days. $10. One Rare Mission. Help us make a difference! 🔗 paypal.com/US/fundraiser/cha… #RareDNA #PPA2

🩵 1 in 10 Americans lives with a rare disease. For Claire, a life-threatening cardiac emergency led to a diagnosis we never knew existed: #PPA2. 10 Days. Just $10. One Rare Mission. Donate:  paypal.com/US/fundraiser/cha… Help us make rare matter. 🩵 #RareDNA #RareDiseaseAwareness

Did you know PPA2 deficiency is a mitochondrial disease? It’s an ultra-rare genetic disorder that affects how the mitochondria function and can lead to life-threatening cardiac arrhythmias and sudden cardiac arrest. This week, we’re proud to raise awareness 💚 #WorldMitoWeek2026

Ortonville, Minnesota Cornfest 2026!! There’s a special Grandma Doris repping our RareDNA shirt! Check out our website to learn more about us and support #PPA2 research at the University of Minnesota Giving! #standingwithclaire #genetics rarednafoundation.org

RareDNA Board Member, Kim, repped her shirt out in the hometown of Ortonville! It’s a simple way to show your support of our mission. Every time this shirt is worn, someone visits our sites! #standingwithclaire #raredisease #PPA2

Spreading awareness throughout WI this weekend! Grandma Sharon and her life-long friends, Karen & Jean. You never know who will see this and find a connection. Where are you wearing your shirts??? #standingwithclaire #PPA2 #heart

RareDNA Foundation Merch Store is open again! 🧬 Wear your support with pride. Every purchase brings us one step closer to launching groundbreaking, grassroots research for PPA2. 🛍️ Shop now: bonfire.com/store/raredna-fo… #RareDNAFoundation #PPA2 #standingwithclaire

Proud that MN is one of the states participating in the #NIH funded BEACONS Newborn Screening project! Especially excited that PPA2 is one of the genes being screened. Earlier detection means more opportunities to protect children & support families. beaconsnbs.org

🩵 Today, on the one-year anniversary of Claire's admission to the cardiac ICU, we are honored to launch the PPA2 Cardiomyopathy Research Fund with @umngive We've committed $5,000 to open the fund & are asking our community to match it. Donate: makingagift.umn.edu/give/fun… #UMNGive

🩵 Today, on the one-year anniversary of Claire's admission to the cardiac ICU, we are honored to launch the PPA2 Cardiomyopathy Research Fund with @umngive We've committed $5,000 to open the fund & are asking our community to match it. Donate: makingagift.umn.edu/give/fun… #UMNGive

We are beyond grateful for the partnership with the @umnmedschool! Patient Groups and Physician Scientists teamed up together to make a difference. 🩵💜

Tune in tonight on @FOX9 to learn more about what the @UMNews (U of M Medical School) is doing to help PPA2!!🫀🩵💜 #RareDNA #PPA2 #HeatbeatforHope #geneticheart

Last day to order from our new merch store! A portion of each sale goes towards our campaign! You can even donate extra if you wish! 😉 Store link: bit.ly/41vjhic #standingwithclaire #genetichearts #HeartbeatforHope #RareDNA #PPA2

As AAU basketball season is underway & we once again enter the gym as a family. It hits differently. Claire survived, @PGHMinnesota did a wonderful story on why we are fighting each day to raise funds for life-saving research. #PPA2 @UMNews Support here rarednafoundation.org/fundra…

Only one week left! ⏳ Our store is still open—but not for long! Don’t miss your chance to shop, support, and make an impact before it closes. Every purchase helps 💙 Shop now! bit.ly/4cvym9v #RareDNA #genetichearts #heartbeatforhope #standingwithclaire #PPA2

Happy Easter! He is Risen ✝️ We do not underestimate the power of our God. As Claire said in an interview this year, “God saved me for a reason…” Thank you to each of who who is part of this next chapter of her story.