🇪🇺 APS ePAG in @ern_reconnet🩸Spanish APS Association vice president (@afosfolipido) 👩🏻🔬PhD in Materials Science
Switzerland
Joined May 2010
- Tweets1.3K
- Following719
- Followers368
- Likes2.5K
Silvia Aguilera retweeted
Thank you #EULAR #PARE for the invitation to chair this important session. I learnt a lot and we really could have kept the discussions going for a long time!
#EULAR2025
#EULAR2025 #PARE #Highlights:
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @DrMiniDey and Marcos Séneca
Silvia Aguilera retweeted
✅ #EULAR2025 | FREE LINK to download @TheLancetRheum paper of the #recommendations on rare #lupus manifestations ⬇️ which will be presented TODAY (Friday) in the session dedicated to challenging #SLE manifestations at 13:30 in hall D1 🕜
📥🔓LINK: authors.elsevier.com/a/1l8og…
Silvia Aguilera retweeted
Laura Cano, president of @openreuma, presents our poster in #EULAR2025 Participacientes: training for the involvement of rheumatic patients in research🔎
Silvia Aguilera retweeted
ERN ReCONNET is at #EULAR2025 in Barcelona! 🇪🇸
Lots of people are stopping by our stand and we’re loving the energy! 💬💙
Come meet the team in the NGO Area — we look forward to connecting and talking about rare and complex connective tissue diseases. #ERNReCONNET
Silvia Aguilera retweeted
Antiphospholipid Nephropathy #APS
Classification, histologic definition and management
#EULAR2025
Silvia Aguilera retweeted
La #Reumatología española ocupa el primer puesto en el ranking de países que han presentado abstracts en #EULAR2024 ¡Orgullosos de todos los reumatólogos/as! 👏🏼👏🏼🔝
Silvia Aguilera retweeted
- Refer your patients to patient organisations.
- AI is here to stay. Are we ready?
- Patient associations are key and they need to be involved.
Take home messages from @sil_aps
#EULAR2024
Silvia Aguilera retweeted
The importance and value of patient organisations being emphasised in the #EULAR2024 #PARE highlights by @sil_aps 👏🏼 Patient orgs can support patients and clinicians in our shared goals
ALT Silvia presenting on stage with slides
ALT Silvia presenting on stage with slides
Silvia Aguilera retweeted
- Newly diagnosed RMDs need special attention
- Exercise is the key to work on mental health!
Silvia Aguilera retweeted
Clinical practices are already using AI - and will empower rheumatologists.
Silvia Aguilera retweeted
EULAR PARE highlights
- Need close collaboration between patients and physicians.
-Child to adult transition need to be smooth to be successful (30% patients can be lost in transitions)
- We need patients to participate in Health Technology Assessment
@rheumnow #EULAR2024
Silvia Aguilera retweeted
PARE summary at #EULAR2024 - love the word cloud highlighting the posters @RheumNow
RA, SLE and JIA were the key RMDs that were focused on. By Silvia Aguleria
Silvia Aguilera retweeted
Closing ceremony #EULAR2024
Silvia Aguilera presenting the key takeaways from the @eular_org PARE @eularYoungPARE (People with Arthritis/Rheumatism across Europe) presentations.
@takeapaincheck @Arthritis_ARC @PatientAdvisors @PatientsCanada @PFMDwithPatient @patientslikeme
Silvia Aguilera retweeted
The importance of transition!
Follow ReCONNET initiatives for transition for patients with rare connective tissue diseases!
Silvia Aguilera retweeted
💁🏼♀️ @sil_aps presenta los highlights d PARE, incluyendo #LupusGPT d @lupuseurope.
La representación española en #EULAR2024 ha sido excepcional, destacando en varias áreas y presentando numerosos posters, sesiones y abstracts.
Felicidades a todos y gracias por vuestra dedicación!
Silvia Aguilera retweeted
Just some of the barriers to supporting patients in self-management.
Important to note the array of factors at play, some easier to address than others but all should be acknowledged to tailor individual self-management guidance.
@RheumNow @ElenaNikiUK #EULAR2024
Silvia Aguilera retweeted
Well said @AilsaBosworth1 - patient organisations are essential stakeholders! 🙌🏻 @NRAS_UK @JIA_NRAS #EULAR2024
Silvia Aguilera retweeted
Some fantastic resources from @NRAS_UK @JIA_NRAS, including SMILE-RA, a free interactive resource promoting self-management! nras.org.uk/smile/ #EULAR2024 @AilsaBosworth1
Silvia Aguilera retweeted
I might be biased but the Arthritis Ireland Behind the Pain programme & talk therapy should be an essential part of learning to manage life with an RMD - Martina Blake going to deeper level at #EULAR2024 – at Vienna, Austria
