late dx #Autistic #ADHD #education #disability Anglo Iranian she/her Bsc hons Post Dip SEND NationalCrisis co-ordinator SEND Community Alliance member
South East, England
Joined March 2009
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The single source of universal trauma for #Autism is school.
Roanna Âû SEND National Crisis retweeted
Punishment & isolation doesn’t teach the brain how to regulate.
It doesn’t address the why behind the behaviour or teach skills to manage big emotions,or support long-term behavioural change.
We need to stop focusing solely on the symptoms & start addressing the root causes.
Roanna Âû SEND National Crisis retweeted
The government has published guidance and this includes Children with medical conditions at school this includes hypermobility/Ehlers Danlos syndrome (EDS), Postural Orthostatic Tachycardia syndrome (POTS), and Mast Cell Activation Syndrome (MCAS).
All of this can be variable from one day to the next and at their worst extremely debilitating. These conditions can be made worse by Covid
MCAS being one that can be particularly difficult to diagnose although there is now a consensus 2 criteria that can be used - 24 hr urine tests rather than tryptase which can be invasive and take multiple blood tests to catch
- mastcellaction.org/assets/_/…
NEW POST: The child behind the symptoms: On #MCAS Awareness Day, we hear from Joy Mason of @MastCellAction about how it's being missed in children and young people, with an intro from @TaniaLT specialneedsjungle.com/child…
ALT image is seen in the article
Roanna Âû SEND National Crisis retweeted
Yes, and also this: Milburn has so far ignored (angrily) the vital safeguarding elements involved in any reform.
disabilitynewsservice.com/la…
Roanna Âû SEND National Crisis retweeted
Suggestion, @Helen_Whately. Rather than focusing on the cost of disabled people, why not focus on the systems failing them?
NHS clinical negligence payments rose from £863m in 2010/11 to over £3bn in 2024/25, - 14 yrs of Conservative government
Where was the accountability?🪡
Roanna Âû SEND National Crisis retweeted
Rationing of #ADHD services? A definite risky strategy…
cambridge.org/core/journals/…
Roanna Âû SEND National Crisis retweeted
Another reminder that child abusers like to hold positions of trust that give them access to, and authority over, children. A professional title is not a safeguard. Children’s safety must always come before an adult’s status or reputation.
“A former schoolteacher and magician from Bexley who sexually abused a nine-year-old girl has been jailed for more than two years.”
newsshopper.co.uk/news/26639…
Roanna Âû SEND National Crisis retweeted
And also this:
'Whately appears to agree social security spending is not spiralling after all… as Tories plan £36 billion-a-year cuts'
disabilitynewsservice.com/wh…
Roanna Âû SEND National Crisis retweeted
schoolot.co.uk/2023/07/05/at…
Attendance awards have no place in an inclusive school. They are discriminatory, unfair, harmful and promote a culture of exclusion.
Roanna Âû SEND National Crisis retweeted
Do you know what I learned today?
People still don’t understand autism
Roanna Âû SEND National Crisis retweeted
Over 116,000 people have signed the petition to protect disabled children’s rights. We have just 48 hours left. Will you join us?
petition.parliament.uk/petit…
Roanna Âû SEND National Crisis retweeted
🧵‼️1/2.
Staff should refrain from communicating with her or offer her any warmth or empathy until she stops banging her head.”
That was a care plan at TEWV’s West Lane.
A child was left to harm herself and told it was “her choice.”
This was punishment dressed up as care. #TEWV
Roanna Âû SEND National Crisis retweeted
Just ONE WEEK to go until the petition to protect SEND legal rights closes. If you care about disabled children’s rights please sign and share. Let’s get as many signatures as we possibly can. Children can sign too.
petition.parliament.uk/petit…
Roanna Âû SEND National Crisis retweeted
To learn. To feel safe and happy at school. To make friends. To have ambitions for the future.
“These are the ordinary things that any child should expect.”
DCP Chair Anna Bird shares what successful mainstream inclusion means to her.
#FightForOrdinary #SENDReform
Roanna Âû SEND National Crisis retweeted
Of course they are real! The UK is decades behind in this area.
A review into mental health, autism and ADHD diagnoses is set to find that rising rates of distress are 'real'
🔴 Exclusive from @cazjwheeler & @connie_dimsdale
Read more: inews.co.uk/news/politics/sc…
Roanna Âû SEND National Crisis retweeted
Mums battle for SEND school places “they don't answer your phone calls anymore, they don't answer your emails anymore". This is far from unusual and always unacceptable. Council behaviour is the SEND reform that’s actually needed. bbc.co.uk/news/articles/cm0q…
Roanna Âû SEND National Crisis retweeted
Labour’s inactivity adviser swears at DNS editor after being challenged on safety of young claimants
#AlanMilburn #Lab26 #Safeguarding
disabilitynewsservice.com/la…
Roanna Âû SEND National Crisis retweeted
This is spot on
It’s cruel to delay ADHD and autism assessments for children
theguardian.com/society/2026…
Roanna Âû SEND National Crisis retweeted
So it starts @UKLabour assault on the disabled. First up, children and young people 😡
Roanna Âû SEND National Crisis retweeted
Will you join in the race to protect the rights of disabled children and young people? Over 75,000 signatures and the petition is number 7 out of over 2000 petitions.
Roanna Âû SEND National Crisis retweeted
…@CarersTrust Yesterday: 1 in 3 carers provide 100+ hours/week. Today: getting carers “back into work”. £86.45 CA = 86p/hour at 100 hours. Replacing that care at minimum wage = £1,271/week, with legal rest protections. Why isn’t reducing those 100+ hours the priority?
The latest Survey of Adult Carers in England shows more than a third of carers are providing 100+ hours of care a week, with over half struggling to look after themselves properly.
Caring around the clock should not mean sacrificing your own health, wellbeing, and ability to live a full life.
Unpaid carers urgently need better funded support, real access to breaks, and a social care system that is there when they need it.
Read our full response here bit.ly/46LO6BI
