Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF
Joined March 2023
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Slow burn run today.
✅️Slow is smooth ➡️ smooth is fast ✅️
@CF_Foundation @higdonmarathon @CFF_CentralOH
#curecf #cysticfibrosis #MakeCFHistory – at Bexley, OH
Let the training begin. Long run Monday!
In August, I hit the streets for my 6.5 x 6.5 x 65 passion fundraiser for the @CF_Foundation.
✅️6.5 Miles.
✅️Every 6.5 hours.
✅️For 65 hours.
✅️For CF.
Follow me for more updates on how to support and participate. 🙏 – at Columbus, OH
65MilesIn65Hours4CF retweeted
Cystic fibrosis is a progressive, genetic disease. People with CF have inherited two copies of the defective CF gene — one copy from each parent. Both parents must have at least one copy of the defective gene. #CFAwarenessMonth
Saturday long run.
I don't run for distance. I run for clarity.
Some days, it just takes longer.
@higdonmarathon – at Columbus, OH
May is Cystic Fibrosis Awareness Month.
In August, I'll be running 6.5 miles every 6.5 hours for 65 hours to raise $1,000,000 for the @CF_Foundation .
#CureCF
65MilesIn65Hours4CF retweeted
As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF
65MilesIn65Hours4CF retweeted
We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer.
on.cff.org/3U7H4A0
Hey @hoka @higdonmarathon @CF_Foundation let us know what you think of our shoe game for the upcoming @RunFlyingPig half marathon. 👇
Go get 'em guys! 👇
#CureCF
Let’s go Team Boomer‼️Run the Chicago Marathon with TEAM BOOMERfor cystic Fibrosis 🏃♀️Contact us at: [email protected] @ @cff_centralohio @cff_chicago @cysticfibrosis @Beam_CF @ChicagoBears
.@MakeAWish gave my niece Gabby an experience of a lifetime before she was taken from us too soon by this terrible disease. 🙏
#WeRunTilWereDone #CureCF @CF_Foundation
The Make-A-Wish Foundation has announced cystic fibrosis is no longer automatically a qualifying condition, because of “life-changing advances” in the outcome of the disease. cnn.it/3Z1N2U2
👇 love this! Way to go Grace!
#WeRunTilWeAreDone
Grace Lidgett, a teen with cystic fibrosis, was told to stick to sprints because her CF would make it difficult to become a distance runner. Grace was determined to prove CF wouldn't hold her back from her goals. on.cff.org/3YRUZek
65MilesIn65Hours4CF retweeted
We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b