Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF
Joined March 2023
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65MilesIn65Hours4CF retweeted
Cystic fibrosis is a progressive, genetic disease. People with CF have inherited two copies of the defective CF gene — one copy from each parent. Both parents must have at least one copy of the defective gene. #CFAwarenessMonth
65MilesIn65Hours4CF retweeted
As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF
65MilesIn65Hours4CF retweeted
We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer.
on.cff.org/3U7H4A0
65MilesIn65Hours4CF retweeted
We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b