Advancing recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) including ME, FM, ES/MCS, CFS
Canada
Joined January 2016
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Aug 8th is #SevereMEDay. 25% of those with #MyalgicE have a severe form of the disease. Help raise awareness.
Action CIND retweeted
Do you write a blog? The #Blog4May12th is back! Include this hashtag in your blog and let [email protected] know so we can post about it. #may12th, #MyalgicE, #pwme, #Fibromialgia , #mcs
Tell2People - a new initiative to raise awareness in May. See details at may12th.link/Tell2People-Det…. Any questions email [email protected]. Please share widely. We want the whole world to know about us. #may12th, #Tell2People, #pwme, #FM, #mcs, #GWI, #CIND, #MyalgicE, #fibro
Help me support May12th International Awareness Day by shopping via iGive. Or, help your favorite cause! igive.com/OFZxA9 #iGiveDoYou
Action CIND retweeted
Disappointing to see Professor Paul Garner, featured in today's @thetimes (£) article by @whippletom, still advocating for recovery from serious post-viral illness by thinking oneself better. My blog post from 1 year ago explains more valerieeliotsmith.com/2021/0… via @ValeriEliotSmit
$5 New Member Shopping Bonus! Join now, when you make your first purchase by 2/15 IGive will give us an extra $5 bonus for May12th International Awareness Day. iGive.com/ip8f6VW #iGiveDoYou
Losing my mind. I thought I saw a tweet from someone I know asking how to get an N95 mask as he store had sold out. I went to check only to return to being unable to find the question. In case it did exist, Amazon.ca has them. HOWEVER - you should know something.
You should know there are several types of N95 masks and they don’t all work. When I was in nursing school, I had to have a mask fit test to determine the correct fit for my face.
Action CIND retweeted
Exercise duration by itself is not an appropriate functional outcome measure for #pwme and patients with #LongCovid. If we wouldn’t stress test a diabetic with a candy bar, we shouldn’t stress #pwme and patients with #LongCovid using bike and treadmill “exercise-for-time” tasks.
Action CIND retweeted
OMFCA is thrilled to announce that we are funding a new collaborative research project! Conducted across the OMF Collaborative Network, this research initiative will investigate sleep disturbances in ME/CFS. Learn more: ow.ly/Qtyt50Gyr0e
Action CIND retweeted
The @NIH is hosting an #MECFS advocacy call on Oct. 22nd at 1 pm MT. Pre-registration isn’t required, so be sure to mark your calendars: nih.gov/mecfs/events
Action CIND retweeted
"It is hard to describe the thrill I felt when reading the words “now-discredited study” rendered as a normative statement in The Atlantic."
virology.ws/2021/09/24/trial…
Action CIND retweeted
We are repeating in two years what has been taking place over forty painful and horrifying years – at California, USA
Great article by @SarahGraham7 featuring my colleague Kelly Fearnley, @b_m_hughes & myself. Attempts to paint #LongCovid as psychological are in full flow #MECFS #MillionsMissing inews.co.uk/opinion/long-cov…
Action CIND retweeted
Ron Davis’s ME/CFS Collaborative Research Center at Stanford’s annual international Working Group meeting is this Wed-Fri on Zoom. Over 100 great scientists are attending. By invitation only. Exciting! Lots of info, ideas and interactions.
Action CIND retweeted
Update from @JanetDafoe: “Ron Davis’s ME/CFS Collaborative Research Center at Stanford’s annual international Working Group meeting takes place this Wed-Fri on Zoom. Over 100 great scientists are attending. By invitation only. Exciting! Lots of info, ideas and interactions.”
Action CIND retweeted
this is what I've experienced for the last few years writing about ME/CFS. It is heartbreaking. The neglect of this patient population has been profound.
