The @CF_Foundation Gateway Chapter serves the #CysticFibrosis community, which includes people with CF and their families and volunteers, in MO and Southern IL.
St. Louis, MO
Joined May 2011
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Way to go, Avery, Gabe & Jenna! We’re so proud of you for representing the #cysticfibrosis community virtually and sharing your story with @RoyBlunt & @senhawleypress during @CF_Foundation’s 12th annual Teen Advocacy Day. #CFadvocacy @jennabernstein2 @meporter
Cystic Fibrosis Foundation - Gateway Chapter retweeted
The Foundation awarded up to $5.6M to Microbion Corp. to develop an inhaled antibiotic that could help break down biofilms and kill drug-resistant bacteria in people with #cysticfibrosis. #CFresearch on.cff.org/2zvbSpL
We're so proud of our #GatewayTogether Pep Rally that went live this morning! Missed it? Don't worry - it's saved on our Facebook page. (The first 15 min are just video intros!) Watch here: facebook.com/cffstl/videos/2…
#CysticFibrosis #CysticFIbrosisAwareness #STL #UntilItsDone
After multiple scrimmages, 2-a-day practices, injuries & (a few) calls on the play - the Cystic Fibrosis Sports Network is READY to go live for our #GatewayTogether: Virtual Pep Rally! Go here to watch us live tomorrow at 10 am: facebook.com/cffstl/
Join us Saturday for #GatewayTogether: A Virtual Pep Rally! We'll feature moments from our #cysticfibrosis community, updates from staff, Great Strides Ambassador & Advisory Board Chair, & the voice of @StLouisBlues @paguytom & @LouieSTLBlues!
RSVP here: facebook.com/events/57326470…
#Cysticfibrosis is a life-threatening genetic disease that affects the lungs & makes it hard to breathe. #CFawareness ctt.ec/_e6bH+
We wouldn’t be able to put on such a successful CF Cycle For Life event each year without amazing backing from some of our local bike shops. Thanks @bikestopcafe and @bigsharkstl for your long-time support of our ride. #ThankYouThursday #RidingForACure
CF mom Deidre Burke is hosting a virtual chat where those who are caring for people with #cysticfibrosis can find support by connecting with fellow members of the CF community. Advance registration is not required but you can here: caresevents.cff.org/springfi… #STL
We’re proud to announce this year’s Gala CF Ambassador is Marjorie!
On Nov. 13 @RitzCarlton help us "Follow the Yellow Brick Road: Path to a cure”
@ExpressScripts is our honoree as 20-year presenting sponsor
We’ll celebrate Emerald City-style in Nov. For now, #StayHome #SaveLives
.@RoyBlunt @hawleymo People with #cysticfibrosis shouldn’t have to choose between their health and their paycheck during #COVID19. Please act to expand paid leave for people with chronic conditions and their caregivers!
Choosing between going to work during #COVID19 or staying healthy is unacceptable. Especially for our community. Join us in asking Congress to expand paid family leave to protect those living with #cysticfibrosis #CFadvocacy act.cff.org/dAJmDSf
There’s no place like home. Stay home. Stay safe. Save CF lives and be on the lookout for a special announcement from the Gateway Chapter next week!
#CysticFibrosis #CFAwareness #StayHome #SaveLives #Covid_19
Join us online April 9 at 6 pm as we discuss active approaches to emotional wellness amidst #COVID19
Ginger Birnbaum will share her story & moderate a panel w mental health profs Stephanie Filigno & Shaina Blair on well-being & coping w stress & anxiety primetime.bluejeans.com/a2m/…
Spread cheer & #cysticfibrosis awareness in your neighborhood!
1. Click below to download a rose template
2. Color the roses!
3. Tape them in your window for your neighborhood to see
4. Post on social media #GrowTheGarden & tag us
d31hzlhk6di2h5.cloudfront.ne…
CF Foundation | COVID-19 Updates from Michael Boyle, MD, President and CEO youtu.be/q8OgTAA7WUc via @YouTube
The last couple of weeks, & days, have been hard. Cancelling trips. Working from home. Closing schools. Social Distancing. There couldn’t be a better time for a hug—a virtual hug, that is. Share this w a loved one who could use one. Here’s one from us, to you.🤗#CysticFibrosis
(4/4) Please take care of yourselves and your loved ones with CF... and we will do the same, as we continue to push this mission forward. #CysticFibrosis #CysticFibrosisAwareness #coronavirus #Covid_19
(3/4) This will impact our #GreatStrides walks in Columbia, MO; Edwardsville, IL; St. Charles, MO; & #STL. We're working to reschedule these walks & are hopeful they can be held later in 2020. We will be in regular communication concerning these walks & any other affected events.
(2/4) Rest assured, the work of the CF Foundation & the Gateway Chapter continues & our dedication to this mission is unceasing. This is why the Foundation has decided to postpone all CF Foundation events through the end of May.
(1/4) As we continue to monitor #COVID19, it is clear these are unprecedented times. We know w that comes anxiety, concern & uncertainties about what lies ahead. Info is being shared continually & we're here to help serve as a resource & connector during this challenging time.