The @CF_Foundation Gateway Chapter serves the #CysticFibrosis community, which includes people with CF and their families and volunteers, in MO and Southern IL.
St. Louis, MO
Joined May 2011
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- Following574
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Cystic Fibrosis Foundation - Gateway Chapter retweeted
The Foundation awarded up to $5.6M to Microbion Corp. to develop an inhaled antibiotic that could help break down biofilms and kill drug-resistant bacteria in people with #cysticfibrosis. #CFresearch on.cff.org/2zvbSpL
Cystic Fibrosis Foundation - Gateway Chapter retweeted
"If you’re not feeling well, the best way that you can show your love and support for someone is to stay home." - Chief Nursing Officer Mary Beck
Cystic Fibrosis Foundation - Gateway Chapter retweeted
So proud of @wdavidmueller, who's taking part in March on the Hill on behalf of @CFF_STL. As Marjorie says, everyone should get medicine when their bodies need it! #CFadvocacy
Cystic Fibrosis Foundation - Gateway Chapter retweeted
16 Yr Clinic Stats
9/11/19 = my #lungtransplant lasting longer than original lungs
PFTs*: ↗️10% since Aug1
O2: 100%⁉️
Weight:↗️⁉️
Energy:↗️
Blood Pressure: Healthy
Edema:⬇️ significantly⁉️
Photopheresis: Working
Doctor: 🥳
Me: 🤯
*: lung function measurements
⁉️: surprise result
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Thank you to everyone who was able to join us at the 11th Annual FestivAle! We raised over $50,000 towards a cure! If you could not attend, you can still donate at festivalestl.com. Cheers!
Cystic Fibrosis Foundation - Gateway Chapter retweeted
.@Britt5k, a recipient of an Impact Grant, is empowering people w/ #cysticfibrosis through a virtual community that promotes the benefits of 🏃 and provides access to a running coach.
Have an idea to benefit the CF community? Apply for an Impact Grant. on.cff.org/2V5ItaJ
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Making the decision to go on disability from your job is incredibly difficult. Rich DeNagel, an adult living with #cysticfibrosis, opens up about how he made the decision and the new perspective he gained. on.cff.org/2V5OYKH
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Have you gotten your special someone a Valentine's Day gift yet? We've got you covered! Early bird tickets are still available until February 22nd. To purchase your tickets visit festivalestl.com. Cheers!
Cystic Fibrosis Foundation - Gateway Chapter retweeted
"When you have cystic fibrosis, the people in our lives are heavily impacted by what we go through. The beauty of this is that we see, and experience, love on a different scale. And this love isn't limited to a companion or partner." 💜 on.cff.org/2tc0gkv
Cystic Fibrosis Foundation - Gateway Chapter retweeted
We are seeking additional auction items for our upcoming FestivAle event and are asking you to consider donating an item or putting together auction basket/package to support @CFF_STL. Message us, email [email protected] or call 314-733-1241 to coordinate delivery/pickup. Cheers!
Cystic Fibrosis Foundation - Gateway Chapter retweeted
How can an Impact Grant benefit the #cysticfibrosis community? @YogaForCF is empowering others with virtual yoga classes livestreamed by instructors with firsthand knowledge of yoga and CF.
Make your idea a reality. Apply for an Impact Grant today! on.cff.org/2MPWfeo
Cystic Fibrosis Foundation - Gateway Chapter retweeted
“I want you to know — everybody to know — that I’m here fighting this with you.”
@God_Son80 surprised Cystic Fibrosis Foundation (@CF_Foundation) Ambassador Nick Kelly on @JimRome with two tickets to the #SuperBowl! 🧡 @brownsgiveback
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Nick Kelly, an adult living with #cysticfibrosis, thought he was just going to meet @God_Son80 on @JimRome today. Watch as he gets the surprise of a lifetime: 2⃣ tickets to the #SuperBowl. 🏈
As a big advocate of the @CF_Foundation, @God_Son80 presented the foundation’s ambassador, Nick Kelly, with the gift and experience of a lifetime.
Cystic Fibrosis Foundation - Gateway Chapter retweeted
It's hard to know how much to share with your children - especially when it's about your #cysticfibrosis. @smelis73, a mom with CF, shares how she's taught her children about her CF. on.cff.org/2Wt8GRS
Cystic Fibrosis Foundation - Gateway Chapter retweeted
We expanded funding to Talee Bio Inc. to $4.5M to develop ways to deliver a normal CFTR gene to the lungs of people w/CF. The company is developing 2 gene delivery candidates, with a goal of starting early stage clinical trials as soon as 2020. #CFresearch on.cff.org/2S9WgyY
Cystic Fibrosis Foundation - Gateway Chapter retweeted
It may be January, but it's still not too late to get a flu shot! 💉 A former clinical nurse explains why. #FightFlu on.cff.org/2QNQbnb
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Looking for a new challenge in 2019! You can raise money for a great cause and get in shape at the same time. Join the 2019 Spring Xtreme Hike! The event takes place on April 6th at the amazing Hawn State Park. Learn more here fightcf.cff.org/gatewaysprin… #hiking #CureCF @CFF_STL
Cystic Fibrosis Foundation - Gateway Chapter retweeted
Three cheers to our hikers with @CFF_STL and @CFFOrangeCounty who are adding tomorrows for people with #cysticfibrosis at #CFXtremeHike today!