Chronic UTI/rUTI/IC/PBS patient, depending on who you ask . . .
The loo, mostly
Joined December 2018
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- Following229
- Followers692
- Likes1.7K
Bladder Confusion retweeted
'Intensive farming behind antibiotic-resistant MRSA, say researchers' #StopSuperbugs #AMRSOS newfoodmagazine.com/news/166…
Bladder Confusion retweeted
Listen to women and their experiences and symptoms. Too many UTI sufferers are fobbed off after “failing” ancient diagnostic tests that the scientific literature has long since shown are flawed. We need more empathy, more research funding —> better tests and treatments
Guidelines are letting down patients with chronic UTI. Thanks to the inews for highlighting this debilitating, life-changing condition. inews.co.uk/inews-lifestyle/…
Bladder Confusion retweeted
An alternative explanation may be that the prevalent bacteria isolated from cultures may not be the species causing symptoms - something the late James Malone-Lee suggested decades ago. Although I suggest an additional explanation for their findings I 💯 agree with the conclusion
Bladder Confusion retweeted
Panel poll #2. @ChronicUTIAus @ConfusedBladder @BladderHealthUK @cuticuk @liveUTIfree Providers can help UTI patients best by:
24%Provide reasons for UTI
65%Provide treatements
12%Listening to concerns
0%Not other health problem
17 votes • Final results Bladder Confusion retweeted
Impressive results from @GarethLuTheryn using ultrasound and bubbles to disrupt biofilms and bacteria. We cannot wait to see more of his research and talk about implications for practice.
Spending the evening presenting some of our @AMR_Research
@uDRIP_Group work at #LGBTQSTEMUCL My first, but hopefully not last conference specifically highlighting the work of LGBTQ+ colleagues in STEM
Bladder Confusion retweeted
@BladderHealthUK My local MP took the issue of CUTI directly to the Health Secretary and asked what they would do in regards to this debilitating illness…the response she received “nothing”…I’m incredulous 🤬
Bladder Confusion retweeted
#ChronicUTI community please fill this in & share widely - they are explicitly asking for our experience of NHS UTI treatment….
Tell us: what is your experience of women’s healthcare in England? theguardian.com/lifeandstyle…
Bladder Confusion retweeted
I have long suspected that Hipprex does more then just prevent UTIs—now we have some data to show that it is anti-inflammatory and may help heal the bladder barrier, as well. journals.lww.com/fpmrs/Abstr… – at Pittsburgh, PA
Bladder Confusion retweeted
Chronic UTI sufferer Sarah Heaton tells @theipaper she was driven to contact Dignitas after feeling she had no other way out of the pain. This condition makes people suicidal and those with the power to improve treatment must do more. (by @connie_dimsdale) inews.co.uk/news/health/chro…
Bladder Confusion retweeted
petition.parliament.uk/petit…
Lets get the link for the petition promoted here and perhaps in the article itself?
Bladder Confusion retweeted
‘I’ve battled crippling UTIs for three decades, it’s time politicians took this seriously’ / MPs, sufferers and campaigners say better treatment for chronic UTIs is long-overdue, reports @connie_dimsdale for @theipaper inews.co.uk/news/health/chro…
Bladder Confusion retweeted
Here is the link to the full report of the @ALTAR_Trial - all 206 pages. It contains a lot more detail than our BMJ paper so for those who are interested - happy reading!
journalslibrary.nihr.ac.uk/h…
Bladder Confusion retweeted
It’s actually mad how hard you have to fight to get medical attention or a diagnosis for things like endometriosis, fibroids, or ovarian cysts. It’s feels like the starting point for clinicians is to mistrust what you’re saying about your body!
Bladder Confusion retweeted
We would like to share our thoughts on this paper. The discussion around dysbiosis due to antimicrobials is of course very important and we welcome research in this area.
@LRH33 @BundrickStewart @chrisharding123 @ased_ali @JennyRohn @sheela_swamy @cuticuk @JoanneMckinlay4
Women who get recurrent UTIs may be caught in a vicious cycle in which antibiotics given for one infection predispose them to develop another, according to a new study by #WashUMed and the @broadinstitute of @MIT and @Harvard. @colinworby
medicine.wustl.edu/news/recu…
Bladder Confusion retweeted
We know that sufferers spend vast amounts of money self-treating chronic UTI, from expensive supplements & treatments to alternative treatment & specialist laboratory testing. Please detail your experiences in this survey 👇
🚨 SURVEY ALERT - For people with chronic UTIs 🚨
We are investigating how much money people are having to spend on treating chronic UTI themselves
Please fill out this short, anonymous survey! Supported by @BladderHealthUK:
bit.ly/39bgmTV
#UTI #WomensHealth
Bladder Confusion retweeted
Please sign this petition to ask the Government to review and fund better testing & treatment of urinary tract infections.
This could make a HUGE difference to the lives of UTI sufferers!
PLEASE SHARE!!! 🙏🙏🙏🙏
#WomensHealth #chronicillness
petition.parliament.uk/petit…
Bladder Confusion retweeted
🚨 SURVEY ALERT - For people with chronic UTIs 🚨
We are investigating how much money people are having to spend on treating chronic UTI themselves
Please fill out this short, anonymous survey! Supported by @BladderHealthUK:
bit.ly/39bgmTV
#UTI #WomensHealth
Bladder Confusion retweeted
#Cuti #Uti #Embeddedinfection.
What a brilliant Podcast! 👏👏Unpicking UTIs and the role of hormones with Dr Rajvinder Khasriya balance-menopause.com/menopa…
