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CureClick is a community-powered platform that revolutionizes the way companies find volunteers for their #ClinicalTrials.

Irvine, CA
Joined October 2014
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It's #LUPUSAwarenessMonth! #31DaysOfLupus #Day21 Plz Share for a cure! Lupus nephritis is the term used when lupus causes inflammation in your kidneys, making them unable to properly remove waste from your blood or control amount of fluids in your body. m.facebook.com/story.php?sto…
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A7a: Ask for advice. Accept feedback you receive. Make it easy for ppl to communicate how they prefer. Respect diff of opinion #CureChat17
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A7: Do it early. Do it often. Do it with the understanding that you're dealing with human beings, not data pools. #CureChat17 nitter.gq/CureClickTeam/status/8…
Q7: If you could share one piece of advice with researchers about engaging advocates, what would it be? #curechat17
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A6 Maybe show advocates what benefits learned to spur them on to continue sharing. What was trial outcome, did they help? #curechat17
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A6: Bring advocates in early to make sure studies are well designed. It will make participation easier across the board. #CureChat17
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I think advocates can help overcome publication bias by pushing to see all results - even null findings. We need transparency. #CureChat17 nitter.gq/Asha4MS/status/8772217…
In fact, we may learn ~more~ from findings that don't deliver on the initial research inquiry. #CureChat17 #opendata nitter.gq/lwahlstrom/status/8772…
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A6. Engage pts, let them know their voices are being heard, raise awareness so they understand the importance & CT process #curechat17 nitter.gq/CureClickTeam/status/8…
Q6: How can we better engage patient advocates in all stages of research? #curechat17
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A5 sometimes, just knowing what's being studied can help spur additional insights from patients, which can help results. #CureChat17
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This is why we should push for publication of all findings. There is so much to learn from all outcomes. #CureChat17 nitter.gq/AmandaHaddock/status/8…
Even unsuccessful trials can provide important answers - especially when the data is shared in a timely manner. #CureChat17 #opendata nitter.gq/TheKyleMurray/status/8…
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Even unsuccessful trials can provide important answers - especially when the data is shared in a timely manner. #CureChat17 #opendata nitter.gq/TheKyleMurray/status/8…
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No volunteers, no research. No research, no treatments. No treatments, no hope. Vicious and cruel cycle. #CureChat17
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The key would be to create centers/individual opportunities that involve those pops deliberately and *transparently* #CureChat17 nitter.gq/CureClickTeam/status/8…
This is also something we've been trying to tackle. Do you have any suggestions on how we can involve more POC?
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A4. More tx options, better understanding of diseases, longevity of life, cheaper tx, better daily living #curechat17 nitter.gq/CureClickTeam/status/8…
Q4: What benefit to patients does medical research bring? #curechat17
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A3 The more people hear about trial research, the less stigma and empowerment ! We need to keep the conversation going! #curechat17
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A3: Without more POC in #clinicaltrials, we miss key understandings about the impact of diseases that differ among populations #CureChat17
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A3: That more and more, companies are looking to advocates to help set the research agenda. Informed voices are critical. #CureChat17
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A3: Advocates who are familiar with the clinical trial process are in the best position to help dispel common misconceptions #curechat17
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A3: Wish advocates knew how powerful their influence truly is. We witness this every day at CureClick. #CureChat17
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Replying to @TheKyleMurray
To take full advantage of digital, we need to rethink both the approach and the messaging. That's why advocates are so critical. #CureChat17
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A2: In 2005, working at a digital ad agency, was asked to help recruit for a prostate cancer trial. Discovered advocates. WOW. #CureChat17
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