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Providing EB patients, families and healthcare providers a place to share experiences while accessing the latest EB research, information and ideas.

Libertyville, IL
Joined February 2010
EB families, what items do you feel are most important for any EB family's emergency kit when they are away from home? #EBawareness
EB families, what items do you feel are most important for any EB family's emergency kit when they are away from home? #EBawareness
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Where have you found a good selection of EB-friendly children's apparel?
As you begin this new year, what additional ways can you help bring greater EB awareness to your community?
EB Resource wishes all of our American families in the EB community a warm, safe and happy #Thanksgiving!
Special thanks to all who took part in re-tweeting posts from our annual EB Awareness Week Tweet-a-Thon. #RT4EB.
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On Sat., there's an EB auction fundraiser in Chesapeake City, MD. Do you have an upcoming EB event? Let us know!
We're officially in 2015. What do you hope that the new year brings to you and your family?
Recently, we highlighted some upcoming events. How can you show your support or spread the word? bit.ly/ITybUS