Providing EB patients, families and healthcare providers a place to share experiences while accessing the latest EB research, information and ideas.
Libertyville, IL
Joined February 2010
- Tweets2.1K
- Following1.3K
- Followers1.5K
- Likes17
EB Resource retweeted
Wow, amazing donations for EB research by Tony Stewart and (racing community 1+Million). Good people in this world. ❤️ ❤️ #eddievedder nitter.gq/ebresource/status/8166…
It is great to see celebrities use their influence to do good things, like raise #EB awareness: usat.ly/2ip0bTQ
EB Resource retweeted
@EBResource 1.8 million from the racing community alone! That is an impressive show of respect & goes a long way towards a cure
EB Resource retweeted
Get $25 play-only tix 2 this #Louisville play 4 #EpidermolysisBullosa @lptsNOW bit.ly/WWWTA2015 @EBResource @CCSMedical @theebadvocate
EB Resource retweeted
#EBweek is October 25-31, 2014 ➜ Help us spread #EBawareness for #RareDisease #EpidermolysisBullosa bit.ly/EBweek #ReTweet4EB
EB Resource retweeted
@EBResource For example minimum 2 meetings per year + introduction meeting with new staff.
EB Resource retweeted
@EBResource Jax has Epidermolysis Bullosa & he needs our help! Visit SaveJaxNow.com to find out how. #savejax Please RT
EB Resource retweeted
@EBResource Please watch, RT and help spread EB awareness. youtube.com/watch?v=VNaBShLI… Help be a part of the cure. Thanks!
EB Resource retweeted
"When you are in Joy, you are in love with the world, and the Universe is in love with you." - Rhonda Byrne #quote
EB Resource retweeted
For every tweet today using #ebfund $1 goes to fund EB research!
EB Resource retweeted
@EBResource This was made to spread awareness about EB. In memory of my Great nephew Drake E. http://www.sponsafier.com/share/48063