Designing the first MAMS trial for patients with Parkinson’s disease, funded by the Edmond J. Safra Foundation led by @foltynie @UCL & @CamilleBCarroll @PlymUni
Joined June 2021
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EJS ACT-PD retweeted
@CureParkinsonsT provided an event themed on MAMS Platforms (Multi-Arm Multi-Stage Trials).
Two prominent MAMS Platforms that had presentations at this event were EJS ACT-PD (we are providing the genetic sequencing) and SLEIPNIR (Norway).
#parkinsonsresearch #parkinsonsdisease
EJS ACT-PD retweeted
HUGE news: The @EJS_ACT_PD multi-arm, multi-stage clinical trial platform for #Parkinsons is now live & recruiting! They are looking for 1600 participants, who will be randomised across 4 arms (3 diff. drugs & a placebo).
Want to get involved in research?
Here is an opportunity:
We’re excited to announce that recruitment for the first multi-arm, multi-stage (MAMS) platform for Parkinson’s in the UK – @EJS_ACT_PD – is open. This project will continuously test new therapies that could impact Parkinson's progression: buff.ly/W7eqbec #ejsactpd
EJS ACT-PD retweeted
We’re incredibly proud to be supporting and co-funding the largest ever UK Parkinson’s research trial, which will test treatments that have the potential to stop or slow Parkinson’s progression. Carroll from the planning team is here to tell you more 👇
prksn.uk/4n4wDKs
EJS ACT-PD retweeted
We’re excited to announce that recruitment for the first multi-arm, multi-stage (MAMS) platform for Parkinson’s in the UK – @EJS_ACT_PD – is open. This project will continuously test new therapies that could impact Parkinson's progression: buff.ly/W7eqbec #ejsactpd
EJS ACT-PD retweeted
Great meeting at the Crick today. @EJS_ACT_PD promises to be a game-changing trial platform. Grateful for the meaningful support to deliver the study in Scottish sites. @NRS_NDN @AnneRowlClinic @EdinburghParki2 @ParkinsonsUKSco @GordonWDuncan
Very excited to be at the @EJS_ACT_PD annual meeting today - an extremely ambitious & exciting new multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons - @CureParkinsonsT is proud to be one of the funders involved
EJS ACT-PD retweeted
Very excited to be at the @EJS_ACT_PD annual meeting today - an extremely ambitious & exciting new multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons - @CureParkinsonsT is proud to be one of the funders involved
EJS ACT-PD retweeted
The @UK_PD_CSG now has 90+ members!
Thank you to all of our members for supporting #Parkinsons clinical research across the UK representing a variety of professions & geographical locations.
If you're involved or interested in Parkinson's research, visit bit.ly/csg-new-member
EJS ACT-PD retweeted
Had such a lovely @EJS_ACT_PD annual information day - made all the better by bumping into these 2 lovelies @morethanatremor @JoeGregory100 and finally getting to meet the lovely Helen 😊
EJS ACT-PD retweeted
Amazing day! What an inspirational group of people! So much has been achieved already with @EJS_ACT_PD! Congrats to @CamilleBCarroll @foltynie & team on fantastic progress. The future of #Parkinsons clinical trial research looked bright today. @CureParkinsonsT is proud to support
EJS ACT-PD retweeted
Great to be @ the @EJS_ACT_PD annual meeting! @foltynie & @CamilleBCarroll are opening proceedings with an update (& celebration!) of what has been achieved thus far in the consortiums efforts to build a MAMS platform for clinical trials of disease modifying drugs for #Parkinsons
EJS ACT-PD retweeted
I built a #Parkinsons app.. but now i have one regret. Read the story of 'Parkinson's ON', a free app that’s available now 👉 medium.com/@kuhan4/i-built-a…
EJS ACT-PD retweeted
Attention 🚨📢 the Parkinson's Excellence Network Awards are taking place in T - 9 days!
The good news is there's still time to book your free ticket to watch the ceremony via live stream at 9pm on 22 November.
What are you waiting for? Register now👉bit.ly/3ZMTrEI
EJS ACT-PD retweeted
Next we had Georgia Mills who is the project manager of the EJS ACT-PD @EJS_ACT_PD multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons
youtube.com/watch?v=KR87hNhf…
EJS ACT-PD retweeted
What a talk! @CamilleBCarroll talking at the @EdinburghParki2 @ParkinsonsUKSco event about involving ppl with #parkinsons in service design and plans for an exciting new trial @EJS_ACT_PD designed to get new treatments faster
EJS ACT-PD retweeted
And just up the #38 corridor from these @CureParkinsonsT posters are a group of posters focused on the @EJS_ACT_PD multi-arm, multi-stage clinical trial platform team - an amazing project trying to accelerate the testing of potentially disease modifying therapies for #parkinsons
EJS ACT-PD retweeted
Next Marie-Louise Zeissler & @_mdbartlett are on stage discussing the PPIE evaluation project which has been a key part of making @EJS_ACT_PD a #Parkinsons patient centered project
EJS ACT-PD retweeted
After lunch, Georgia is back on the stage & she is discussing the work of the Comms working group, outlining future plans for how the team will engage & communicate with the wider #Parkinsons community about the @EJS_ACT_PD
EJS ACT-PD retweeted
A great day @TheCrick for @EJS_ACT_PD annual meeting. So much accomplished but more to do! Keeping PwP and carers central to all
Michele Bartlett @_mdbartlett has the full attention of everyone in the room as she introduces the importance of trial participation for the Patient & Public Inclusion & Engagement working group
