#Lupus advocate raising awareness while advocating and building #ChronicFlair to empower people living with #Chronic conditions to thrive.
usually Los Angeles.
Joined May 2009
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When @ACRheum and @UCLAHealth ‘s Dr. Yang are sharing #Rheum News that matters ✅ out a “Great Debate” at #ACR26
Big questions. Competing perspectives. One Great Debate.
Dr. Howard Yang of UCLA Health previews ACR Convergence 2026’s Great Debate: Diagnosing Sjogren’s Disease: Is Lip Biopsy Really Necessary, scheduled for November 10, 2026, from 8–9 a.m. and shares his perspective on the discussion ahead.
Watch the video, and tell us: What questions do you hope the debate will address?
#ACR26
Amanda G retweeted
Invisible Disabilities Week ends today. But for millions living with chronic illness and invisible disabilities, the pain, fatigue, stigma, and daily challenges don't end when awareness week does.
You can look healthy and still be struggling. You can have a good day and still be disabled. And you shouldn't have to prove your pain to deserve compassion, understanding, or accommodations.
As we close out #InvisibleDisabilitiesWeek, let's remember that awareness is only the beginning. Real change happens when we listen, believe people, challenge misconceptions, and make accessibility a priority.
Because nobody should have to look sick to be taken seriously.
What's one thing you wish more people understood about living with an invisible illness?
#InvisibleDisabilities
Step by step…your entire donation directly funds #Lupus bc the @LupusResearch Board covers all expenses
Check out my FUNdraising page - give.lupusresearch.org/fundr…
Amanda G retweeted
#Lupus is a complex chronic illness that has impacted my life. The @LupusResearch Alliance Board members fund all administrative costs so every donation made to my team directly funds research.
Please support my FUNdraising by joining the team today.
give.lupusresearch.org/fundr…
See you tomorrow, NYC! 💜👟
LRA President and CEO Albert T. Roy and lupus advocate Maddy Bustamante Cocchiarella joined CBS New York to talk about tomorrow’s NYC Walk with Us to Cure Lupus and the importance of coming together to support lupus research.
A big thank you to CBS News New York for helping us spread the word!
🎥 Catch the interview: bit.ly/4eSjy5B
#Lupus #LupusResearch #WalkWithUs #LupusWalks
Amanda G retweeted
Day 1 of #BIOPACE26 was filled with informative sessions on advocacy, policy access and research and development. #LADAorg loved connecting with KOLs like @nkartatx CEO Paul Hastings and
@IAmBiotech CEO
John Crowley. #PatientVoice
Amanda G retweeted
Almost 15 million people in the U.S. are fighting an autoimmune disease, and a third of them live with more than one condition. For many, today’s treatments are not enough. Biotech researchers are working to change that.
More at FightofOurLives.com
#FightofOurLives #BiotechInnovation
When your joints ache, moving more might be the last thing on your mind. But staying active could actually help.
In @EatingWell, NYU rheumatologist and Lupus Research Alliance-funded researcher studying lupus and the gut microbiome, Gregg Silverman, MD, joins other experts to share why it may be time to rethink how you manage joint pain.
Learn more about joint health: bit.ly/4y9VVNs
#Lupus #LupusResearch #LupusAwareness
Amanda G retweeted
When your joints ache, moving more might be the last thing on your mind. But staying active could actually help.
In @EatingWell, NYU rheumatologist and Lupus Research Alliance-funded researcher studying lupus and the gut microbiome, Gregg Silverman, MD, joins other experts to share why it may be time to rethink how you manage joint pain.
Learn more about joint health: bit.ly/4y9VVNs
#Lupus #LupusResearch #LupusAwareness
88 years… 88mph 💗
Celebrating with @DocBrownLloyd
Yaaas! @MadMoneyOnCNBC
when Jim refers to @LadyGaga
this “Club Member” dances to post #MadTweets with her “Paws up!”
Congratulations @nyugrossman ‘s David B. Beck, MD,PhD honored by @ACRheum for promising, independent contributions to #Rheum research by an early-career physician-scientist. #ACR26
Congratulations to David B. Beck, MD, PhD, of @nyugrossman, recipient of the Henry Kunkel Early Career Investigator Award. This honor recognizes promising, independent contributions to rheumatology research by an early-career physician-scientist. #ACR26
Amanda G retweeted
Five signs your doctor is really listening to you:
1️⃣ They look at you more than their computer.
2️⃣ They ask what matters to you.
3️⃣ They say, “Tell me more…”
4️⃣ They repeat back what you said.
5️⃣ They build the plan WITH you.
Watch the video for more.
Grateful to @LADAOrg ‘s @KathleenArntsen for understanding the impact of “patient experiences” and importance of @FDA in accelerating #Lupus treatments.
Amanda G retweeted
Congratulations to Anisha B. Dua, MD, MPH, of @NUFeinbergMed, recipient of the ACR Distinguished Fellowship Program Director Award. Her leadership in mentoring and training future rheumatologists strengthens the field’s future. #ACR26
Don't forget: ACR Convergence 2026 abstracts are now online! Browse the nearly 3,000 accepted abstracts → acr.tw/30RaIzl
ACR Convergence will be held November 6-11 in Orlando, Florida. Learn more → acr.tw/3NoWDjP
#Lupus is a complex chronic illness that has impacted my life. The @LupusResearch Alliance Board members fund all administrative costs so every donation made to my team directly funds research.
Please support my FUNdraising by joining the team today.
give.lupusresearch.org/fundr…