#Lupus Community- Chat: Sunday at 3PM ET - Next #LupusChat is TBD on BlueSky | Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_Carli
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Joined July 2011
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#LupusChat retweeted
💜 LIVE WEBINAR | Join the Conversation!
Partners in Health: Building Stronger Patient-Care Team Partnerships
📅 October 26 | ⏰ 6 PM PT
📍 Facebook & YouTube LIVE @Looms4Lupus
Join rheumatologist Dr. Samy Metyas, patient advocate Elizabeth Anderson, and caregiver Elizabeth Santa Cruz for a real conversation about strengthening partnerships between patients, caregivers, and healthcare teams.
📥 Plus, access downloadable tools in English & Spanish.
Whether you live with lupus, support someone who does, or care for someone with a chronic illness, this conversation is for you. 💜
#LoomsForLupus #PartnersInHealth #LupusCommunity #PatientAdvocacy #HealthEquity
🎉Hey #LupusChat fam, join us in wishing our founder & CEO @TiffanyAndLupus a Happy Birthday! Tiffany, we appreciate your advocacy and passion. We hope you’re having the time of your life. You deserve nothing short of the joy you’ve brought to the lives of all in the community.
🎉Hey #LupusChat fam, join us in wishing our founder & CEO @TiffanyAndLupus a Happy Birthday! Tiffany, we appreciate your advocacy and passion. We hope you’re having the time of your life. You deserve nothing short of the joy you’ve brought to the lives of all in the community.
Today we’re celebrating Carly! Join us in wishing our incredible co-host, @SynceNerd_Carli, Happy Birthday! 🎂🎉 Her brilliance, passion, & commitment to our community are woven into the heart of #LupusChat. We wouldn’t be here without her. Happy Birthday, Carly! We love you! 💜
#LupusChat retweeted
It’s not too late to register for our Lupus & You event tomorrow night on Practical Tips for Your Journey. Listen as experts and lupus warriors discuss practical strategies for navigating daily life with lupus.
Register today! ⬇️
buff.ly/ykTmTDe
#LupusChat retweeted
Thank you so much Tiffany, it is all of us working together, collaboration is key! #LADAOrg
Thank you for all you do for the lupus community @KathleenArntsen, the advocacy and research you make possible with @LADAOrg is truly commendable! 💜
#LupusChat retweeted
💜 August is #NationalWellnessMonth - a reminder that taking care of your mental and emotional well-being is an important part of overall health.
For people living with lupus, stress may contribute to flares and worsening symptoms. Learning healthy ways to manage stress can be one way to support your well-being.
Explore practical stress management tips and resources: bit.ly/3RblzS3
#NationalWellnessMonth #Lupus #LupusAwareness #LupusResearch
Such a remarkable donation, thank you for helping fund lupus research! 💜
Research changes lives, and partnerships make progress possible.
The Lupus Research Alliance is grateful to the @LADAOrg for its generous $200,000 donation to support lupus research.
LADA President & CEO @KathleenArntsen presented the donation at the organization’s 26th Annual Lupus Charity Golf Classic. Since 2000, LADA has contributed more than $1.63 million to the LRA to help bring us closer to eradicating lupus.
Learn more: bit.ly/4xiY499
#Lupus #LupusResearch
#LupusChat retweeted
Kudos to #Lupus Advocates Elizabeth SantaCruz and Miah Andrade for sharing their journeys and their desired outcomes for a meaningful treatment during the panel at @FDA Accelerating Product Development for #PediatricLupus #PatientVoice @CaringForLupus @carrainc
#LupusChat retweeted
Meaningful insights shared by all #patient and #carepartner advocates on risk/benefit assessments of new treatments during the clinical trials panel at the @FDA Pediatric SLE Workshop. Thank you McKenna, Chloe, Elizabeth, Miah and Nia for your honesty and courage!
That’s a wrap! Two days of dynamic data and lively discussions around Accelerating Product Development for Pediatric Systemic Lupus Erythematosus (SLE). We are hopeful that this can lead to advancement and approval of more treatments for youth with Lupus.💜 #LupusChat #LADAOrg
#LupusChat retweeted
So honored to work on this project with such amazing and passionate advocates! Thank you @CaringForLupus and Miah and @Annezab 💜
Kudos to #Lupus Advocates Elizabeth SantaCruz and Miah Andrade for sharing their journeys and their desired outcomes for a meaningful treatment during the panel at @FDA Accelerating Product Development for #PediatricLupus #PatientVoice @CaringForLupus @carrainc
🔥 PANEL: Future Direction of Clinical Trials, moderator: Dr. Raj Nair. Panelists: Drs. Caroline Benichou-Auriche, Jordan Roberts, Kalyanee Appanna, Sarah Ringold, Stephen Balevic, Hermine I. Brunner, Stacy Ardoin, Lynne Yao, featuring Patient Advocate, Nia Cooper. #LupusChat
Dr. Rebecca Sadun presented on the Extrapolation of Efficacy from Adults: Gaps in Knowledge and Remaining Uncertainties #LupusChat
Patients and Care Partners, McKenna Bowes, Chloe Raymond, Nis Cooper, Elizabeth SantaCruz, and Miah Andrade for the final patient panel of the day, Patient/Family Panel: Risk Tolerance and Enrollment in Clinical Trials moderated by Dr. Stacy Ardoin #LupusChat #LADAOrg
Dr. Sule Yavuz (@AstraZenecaUS) shares the industry perspective from global pediatric studies, during the Lessons Learned from Conducting Clinical Trials in Pediatric SLE session. #LupusChat
Dr. Hermine Brunner shared Lessons Learned from Conducting Clinical Trials in Pediatric SLE. Dr. Brunner discussed how trials have been delayed due to restrictive eligibility criteria and recruitment/enrollment difficulty. #LupusChat
#LupusChat retweeted
Thank you Elizabeth & Miah for sharing you insights and elevating the #PatientVoice in #PediatricLupusResearch
#LADAorg
We are honored to represent the voices of #Lupus patients & caregivers at the FDA Workshop on Accelerating Product Development for Pediatric SLE
A heartfelt Thank You to @US_FDA @carrainc and @LADAOrg for the opportunity to participate in this important conversation
#LupusChat
