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Profound Ireland

@ProfoundIreland

The voice of kids/adults with profound/severe disabilities (physical and/or solely intellectual), & complex, dependent life-long needs + their family carers

facebook.com/PROFOUNDIRELAND/?fref=ts
Joined January 2017
  • Tweets2.5K
  • Following514
  • Followers1.6K
Find out how you can help your disabled adult find a suitable residential place while you’re still alive, at the #BeforeWeDie National Assembly on Sat 19th Sept. #Disability #ProfoundDisability You can learn more, and book your FREE tickets here: eventbrite.com/e/before-we-d…
Pic of a disabled young woman with long brown hair and wearing a navy sweatshirt with New York on it, behind her,her parents sit on a sofa. The pic is on a green background with the following words: National Assembly 19th September 11.00am - 3.00pm The Helix, DCU, Dublin Dergn Stadi NEW VAD IZ For more information go to: www.beforewedie.ie What happens when we are gone?

ALT Pic of a disabled young woman with long brown hair and wearing a navy sweatshirt with New York on it, behind her,her parents sit on a sofa. The pic is on a green background with the following words: National Assembly 19th September 11.00am - 3.00pm The Helix, DCU, Dublin Dergn Stadi NEW VAD IZ For more information go to: www.beforewedie.ie What happens when we are gone?

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Please see below our statement in relation to the Care Referendum. @ProfoundIreland #disability #carers The Optional Protocol of the UNCRPD must be ratified without delay.
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More family carers set to qualify for the state pension from 2024 gov.ie/en/publication/90d8b-…
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Families in the UK face similar issues of burnout due to lack of respite and future planning @NatFedVSP @InclusionIre @CarersIreland bbc.com/news/uk-england-camb…
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How is it okay to expect an exhausted parent to spend 3 hours a day driving her disabled adult son to a day service? @DonnellyStephen @rodericogorman @AnneRabbitte @CarersIreland Once again, those with the highest support needs are neglected and ignored. With @Pink_Avvy
Words pic: After a year of battling, and a false start, we've found an Adult Day Service for M. He's doing well, doing short settling-in days. However, it's a 40 minute drive away, which is gonna be tough for me 4 times a day. I'm trying to get transport for him. But it's very scarce! Especially for someone complex like M, as he needs an escort too. Transport used to be ok in most areas, but they seem to be having a real crisis now. It's sad, cos it's important for independence. And we need it too. They're putting school leavers and families in such a tough position with the lack of transport now. It's like you should be so grateful to get a day service place at all. I'm going after them for it, cos I can't be on the road almost 3 hours a day!

ALT Words pic: After a year of battling, and a false start, we've found an Adult Day Service for M. He's doing well, doing short settling-in days. However, it's a 40 minute drive away, which is gonna be tough for me 4 times a day. I'm trying to get transport for him. But it's very scarce! Especially for someone complex like M, as he needs an escort too. Transport used to be ok in most areas, but they seem to be having a real crisis now. It's sad, cos it's important for independence. And we need it too. They're putting school leavers and families in such a tough position with the lack of transport now. It's like you should be so grateful to get a day service place at all. I'm going after them for it, cos I can't be on the road almost 3 hours a day!

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A Cork girl with complex medical needs has been refused access to school for more than six months, with various government departments refusing to say who is responsible for facilitating her return irishexaminer.com/news/munst…
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Thank you to everyone on here who has helped us to raise awareness and advocate for the needs of profoundly disabled children, adults and their carers over the past 6 years #MyTwitterAnniversary
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At the ⁦@AccessForAll7⁩ disability protest in Clontarf #Housing #healthcare #climate #transport #independence #education #EQUALITY
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The cruelty of life after caring 😢 Via @AddressingLife
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“They still expect our children to die before we do,” was the response by families of profoundly disabled children and adults to the HSE Service Plan for 2022. @AnneRabbitte #disability facebook.com/PROFOUNDIRELAND…
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Profound Ireland joined @Twitter five years ago. We’re a very small group of parents trying to raise awareness of the particular difficulties affecting profoundly disabled children and adults, and their carers. Thank you for your support #MyTwitterAnniversary
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Respite for profoundly disabled children and adults is a disaster or non existent in many parts of the country @morningireland @CarersIreland @AnneRabbitte
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"The lives and needs of profoundly disabled children and adults, and their carers, should be reflected in all communications, and considered in all policy decisions." This was our key ask at our inaugural meeting with the new CEO of Inclusion Ireland, Derval McDonough 1/
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Have your say on the future of disability services here ⬇️⬇️ gov.ie/en/consultation/e9193… (And yes we appreciate this is yet another consultation, but if we don't respond, we won't be heard)
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Happy 10th birthday to @LauraLynnHouse Ireland's Children's Hospice who have been providing loving support to Profound Ireland's @AddressingLife's son, Brendan Bjorn. THANK YOU for providing palliative support for children with life-limiting conditions & their families! 🥰
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At Profound Ireland we believe the draft national housing strategy for disabled people needs a lot more work before it is ratified as a strategic plan. @HousingAgencyIE #NationalHousingStrategyForDisabledPeople 1/
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What we raised at the Consultation on the Draft Initial State Report under the United Nations Convention on the Rights of Persons with Disabilities on 26.3 .. #UNCRPD #Disability facebook.com/PROFOUNDIRELAND…
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