Sam suffers from a very rare, terminal brain disease called Vanishing White Matter Disease (VWM)
Joined October 2014
- Tweets600
- Following79
- Followers162
- Likes298
Sam VWM retweeted
Thank you to all the GHS students and my former Glenville students that came out and supported @SamvsVWM at our sidewalk sale!
Sam VWM retweeted
Hi Greenwich!!! Long time, no tweet! The “BEST DAY EVER” hat project has expanded into baseball hats! Please help us spread the word and retweet! 100% of profits go to @SamvsVWM ! best-day-ever-hats.myshopify…
@DrJones_GPS @MJDAmico_GPS @GWCHFreePress @GPSDistrict
Sam VWM retweeted
The entire Glenville School community is getting into the Best Day Ever Hat Project! bit.ly/2HMJfVc @Marc_DAmico @MissDBurke @SamvsVWM
Sam VWM retweeted
What an amazing night spent at the Danbury Ice arena selling our staff and student made hats! We almost sold out again! Time to get back to knitting! @GVPrincipal @GreenwichpsCIPL @GPSDistrict @DrJones_GPS
Sam VWM retweeted
3-year-old boy dies following courageous battle with rare genetic disease https%253A%252F%252Fwww.boston25news.com%252Fnews%252F3-year-old-boy-dies-following-courageous-battle-with-rare-genetic-disease%252FGKT6L7OJTNBC5G35AERTAVOKUM%252F
Sam VWM retweeted
On December 23rd, Cal will turn 10. Fifty percent of the kids with Cal's disease do not live beyond the age of 5. Help us celebrate with the only gift that matters, a cure.
The Calliope Joy Foundation classy.org/campaign/c259911
Sam VWM retweeted
Happy Halloween!!! 👻🎃
Our favorite chair costumes from @samvsvwm this year 😍
& Shout out to a Detroit company @rolling_buddies for their creative costumes 🙌🏼
Have Fun & Be Safe tonight!!
***Don’t forget to sign up for the waitlist!!
>> bit.ly/olupwaitlist
Sam VWM retweeted
10 bakeries
60 kid bakers
5000 cupcakes and 1200+ attendees for our biggest and most amazing #CupcakeChallenge ever. Thank you to everyone who made this such an inspiring day.
Sam VWM retweeted
It’s #GivingTuesday! Retweet @Benevity’s video today using #BeTheGood (hint: it’s pinned to their profile). Make sure you mention us @VWMFamilies and they’ll donate $10 on your behalf! bit.ly/BeTheGood2018
Sam VWM retweeted
Local news story about Addi's lemonade stand for @SamvsVWM and @vwmff! connecticut.news12.com/Clip/…
Sam VWM retweeted
Our children have so much to teach about living with #leukodystrophy. What could be better than wheelchair drag racing at the @UlfUnited meetings. Thanks to @SamvsVWM for sharing this moment. #supersiblings #DragRace
Sam VWM retweeted
Congratulations to the 2017 #CNNHeroes winner Amy Wright of Bitty & Beau’s Coffee. Thank you for promoting and supporting the #employment of people with intellectual and developmental disabilities.
cnn.com/2017/12/17/world/amy…
Sam VWM retweeted
Proceeds from this new flavor go to SeriousFun Children's Network - Check out the amazing work they do seriousfunnetwork.org
Sam VWM retweeted
CT family wants you to smash a pie in your face to raise money for @SamvsVWM seeking a cure of rare brain disease.
newyork.cbslocal.com/2017/09…
Sam VWM retweeted
ULF July Conference registration is now open!
ulf.org/conference/ fb.me/93pBhKC8A
Sam VWM retweeted
Danbury agency launches rare-disorder awareness campaign newstimes.com/business/artic… via @newstimes #findacureforvwm @samvsvwm @vwmfamilies
Sam VWM retweeted
Our #RareDiseases campaign is out now! Find advice on diagnosis & treatment here feat. @RareDiseases : bit.ly/1YJ7BQk
Sam VWM retweeted
Thank you @usatoday for this inspiring #RareDiseases story about @SamvsVWM! #WRDD2017 #findacureforvwm @telavivuni #leukodystrophyresearch
