The Sappani Foundation is a CRA registered charitable organization dedicated to empowering vulnerable persons and marginalized communities. 🇨🇦 🇺🇸 🇮🇳 🇱🇰
Canada
Joined April 2021
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Sappani Foundation retweeted
Interesting presentation from @jonirutter from @ncats_nih_gov on new paths for rare diseases . @SappaniFDN has two gene therapy projects ; on CNS and retinal for CDG + almost ready for human trail with @PerlaraPBC on drug repurposing . Investing in R&D is only way for new cures
Congrats to Humnah Tahir ,recipient of 2023 Sappani Foundation Ela award in partnership with @CNIB . The award is for an exceptional Canadian visually impaired BIPOC girl student in low income situation to support post secondary education.
Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.
For more information, visit cnib.ca or sappanifoundation.com.
Sappani Foundation retweeted
The @SappaniFDN, @CureSrd5a3 and @VJsapps created an Ela worm avatar for drug repurposing in 2019.
After many twists and turns, HMG-CoA reductase emerged as a target that may restore the balance between polyprenol and dolichol. perlara.substack.com/p/low-d…
Our biggest funding is towards rare diseases . 70% of inherited genetic disorders can be prevented . 95% of rare diseases don’t have a cure . Govts need to do more to fund prevention, incentivize pharma companies to invest more in rare disease cures .
Sappani Foundation retweeted
Looking to start a conversation on rare diseases with young people? With our School Toolkit, you can use:
👨🏫 2 lesson plans
📗 2 books, Merlin, the Little Feline & A Friendship Story
💜colourable poster
✨ Upcoming Teenager Lesson Plan next week!
➡️ cutt.ly/g20AhGl
Sappani Foundation retweeted
A great way to raise awareness 📣 in your network and show your support for #RareDiseaseDay is to use a personalized frame for your profile picture on Twitter.
Check out the tutorial on how to create your profile frames and apply them to your photos ➡️ cutt.ly/w9tI5Pb
Sappani Foundation retweeted
The #16Days are...
Time to take action.
Time to stand with survivors.
Time to end #SGBV.
This and every year, we join the global #16DaysOfActivism campaign to end sexual and gender-based violence.
Join us. Together we can #UNITE #Orangetheworld, and #EndVAW. – at Mumbai, India
Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.
For more information, visit cnib.ca or sappanifoundation.com.
Sappani Foundation retweeted
New CDG pages are published on #cdghub ! Learn more about disorders of N-linked #glycosylation ALG2-, ALG9-, ALG11-, ALG14- & DPAGT1- CDG here cdghub.com/cdgs/
An op-ed by @VJsapps and @shuvmajumdar on how Canada can work with India and Pacific democracies to help Sri Lankans rebuild collectively for a pluralistic democracy and counter China
thestar.com/opinion/contribu… @McKinnonDavid @AnitaAnandMP @gary_srp @MASumanthiran @surendirans
"For major Pacific democracies determined to establish a rules-based order, this is an opportunity to counter Beijing’s hegemonic ambitions and demonstrate how collaborative interventions can help Sri Lanka overcome the crisis...."
Sappani Foundation retweeted
For Pacific democracies determined to establish a rules-based order, @shuvmajumdar and @VJsapps argue that "rebuilding a bankrupted #SriLanka is an opportunity to counter Beijing’s hegemonic ambitions." #cdnpoli macdonaldlaurier.ca/sri-lank…
Call for Climate action champions. 100 of them 🇱🇰 🇮🇳🇧🇩🇳🇵🇧🇹, 18-35 yrs. 50% Women, 12 months , virtual and in person . Details here. orfonline.org/climate-action…