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Dear @RepJeffries, pls do not extend the PTC. That money goes directly to the big insurance companies. The law allows them to keep 15pct of the 26b as profit. But it gets worse. They can game that number with their subsidiaries. They will deny care and make patients fight to get the care they need. With or without the PTC the deductibles are unaffordable, and the max patient OOP is worse. If you can't pay the deductible, all you did is give the money for free to the insurance companies that we should break up What should we do ? See my next week for some suggestions

For those who say it’s time for universal care. I am all for it. It would be nice if we could find a way to reduce the cost of care and make it available to everyone, for anything. But it will take work to get there. Other countries with Universal Care make “Most Things available to All People”. It’s not perfect. In our country, we make “Everything available to Most People”. The question for this country, unlike others, is how we can make the best possible care and therapies, regardless of cost, to everyone ? Read @AbdulElSayed ‘s book on Medicare for All. He wisely had more questions than answers. Medicare for All ? Global Budgets ? Or something else ? It’s a difficult path from where we are to “E4E” Healthcare. ?Everything for Everyone) My hope is that we can put together a Simpson Bowles type, Blue Ribbon Commission. One that includes representatives of all stakeholders. From all different type of patients. Including rare disease parents. Rural and Urban Hospitals. The most expensive hospitals that offer unique care. Pharma companies that offer everything from genetics to Cell and Gene Therapies. You get the point Some people think we can just tell all those working in the healthcare system what to do. That’s the fastest way for this to fail. We need to be as close as we can to being on the same page. And we need to figure out a non partisan manner of running our American version of Universal Care. No reason we can’t start now