To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease
Baltimore, MD
Joined June 2012
- Tweets1.5K
- Following823
- Followers1.1K
- Likes1.7K
Sickle Cell Fund retweeted
SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®) from national and global markets on September 25, 2024. Read the MARAC statement here sicklecelldisease.org/2024/0…
Sickle Cell Fund retweeted
pfizer.com/news/press-releas…. Attention #SickleCell we need to be careful and WEAN people off Oxbryta and not just stop it. Let us know if we can help! We will have new meds-So do not lose hope or give up.
Sickle Cell Fund retweeted
Hi everyone!! It is sickle cell awareness month and we need action and improvements. The National Alliance of Sickle Cell Centers now has >100 recognized #sicklecell center delivering multi-disciplinary care. Check us out! #SickleCellAwarenessMonth
Www.sicklecellcenters.org
Sickle Cell Fund retweeted
Yesterday, our team of Editors united in support of our blood drive, hosted in recognition of #WorldSickleCellDay. Together, we collected more than 40 pints of blood.
Thank you to all who donated, organized the drive, and extended their support.
#ShinetheLightonSickleCell
Sickle Cell Fund retweeted
ICYMI:
In observance of #WorldSickleCellDay, CGTLive brought together a variety of expert insights on navigating the rapidly expanding landscape of care for this inherited blood disorder.
#SickleCell #ShinetheLightonSickleCell2024 @WEPSCF
More:
cgtlive.com/view/choosing-ri…
Sickle Cell Fund retweeted
Shine the Light on Sickle Cell is an opportunity for people around the country and around the world to stand up and speak out for a universal cure. Learn more about how you can get involved: wepsicklecell.org/sinerge/sh… @WEPSCF
Sickle Cell Fund retweeted
Statement on improving health through DEI ama-assn.org/press-center/pr… (via @AmerMedicalAssn)
#ShineTheLightOnSickleCell
Sickle Cell Fund retweeted
It's June so you know it's Sickle Cell awareness month.
Hope through progress: advancing Sickle Cell care globally
#ShinetheLightonSickleCell #Sicklecelldisease @NCDAllianceKe @VihigaCountyGov @MOH_Kenya
Sickle Cell Fund retweeted
Read more on how Dr. Lori Vick is shining a light on World Sickle Cell Awareness Day to continue to advance health care globally through St. Jude Children’s Research Hospital’s Sickle Cell Nursing Boot Camp. #ShinetheLightonSickleCell
bit.ly/4bfE5MS
Sickle Cell Fund retweeted
Today, we reflect on Juneteenth in the U.S., and also celebrate World Sickle Cell Day! #ShineTheLightOnSickleCell
Learn more about sickle cell disease and community-based advocacy in Delaware:
sicklecellanemianews.com/new…
ALT For World Sickle Cell Day 2024, staff members and patient volunteers at ChristianaCare’s Wilmington Hospital in Delaware promote the need for advocacy for those impacted by sickle cell disease, including educating the community about the disease itself.
Sickle Cell Fund retweeted
Today is #WorldSickleCellDay, a day to #ShinetheLightonSickleCell and raise awareness about #SCD and its impact on people around the world. Learn more about patient experiences and hope for new treatments: asbmb.org/asbmb-today/scienc….
Sickle Cell Fund retweeted
Love is sweet.. a family is beautiful. With preventable longterm illness like Sicklecell disease,it can be different. Today marks the world Sicklecell day. Remember to screen yourself, partner and family.
#shinethelightonsicklecell
@uscrfuganda @TackleSickle
@UYCAS256
Sickle Cell Fund retweeted
Today is World Sickle Cell Day and June 19th. Today I’m celebrating with the sickle cell community at a 24hour event.
Please keep an eye out for buildings across the East Coast to be illuminated in a radiant red glow.
This isn't a festive display - it's a powerful symbol of recognition for World Sickle Cell Awareness
Day!
Landmarks nationwide are joining the effort to #ShineTheLight on Sickle Cell Disease, a serious inherited blood disorder. By turning red, these buildings raise awareness and show support for those living with the condition.
You can join the cause too! Here's how:
🩸 Wear red! Don a red shirt, tie, or ribbon to visually represent your support.
🩸 Share this message! Spreading the word online and offline helps raise awareness.
🩸 Learn more! Educate yourself about Sickle Cell Disease and how you can advocate for those affected.
Let's work together to #ShineTheLightOnSickleCell2024 and create a brighter future for those living with this disease!
Sickle Cell Fund retweeted
Breakthroughs in #genetherapy are transforming the landscape of sickle cell disease treatment. This #WorldSickleCellDay, we celebrate the science that brings us closer to a cure. #SickleCellAwareness #InnovationInHealth sicklecelldisease.org/get-in…
Sickle Cell Fund retweeted
Join the fight against sickle cell disease this World Sickle Cell Day! Follow @SCDAAorg and @WEPSCF to raise awareness and show your support for the 100,000+ individuals living with this condition in the U.S. 🌎💪
#ShineTheLightOnSickleCell2024 #WSCD2024 #sicklecelldisease
Sickle Cell Fund retweeted
#DYK? Sickle cell disease and trait affect a diverse group of people, including those of African, Hispanic, Middle Eastern, Mediterranean, and South Asian descent. OMH joins @WEPSCF in observing World Sickle Cell Day and bringing attention to #SCD: wepsicklecell.org/
Sickle Cell Fund retweeted
Did you know:
* About five thousand Marylanders have sickle cell disease?
* One in every 13 babies born carry one copy of the sickle cell gene, known as sickle cell trait.
* Research on sickle cell is about $1,000 per person, while it's $10,000 per person for cystic fibrosis?
Sickle Cell Fund retweeted
Today is World Sickle Cell Awareness Day. Last night, the @UMMC downtown and Midtown campuses lighted up in red for #SickleCell awareness. It falls on Juneteenth since sickle cell disproportionately affects people of African heritage, creating health #equity issues.
Sickle Cell Fund retweeted
Sickle cell disease and trait affect a diverse group of people. To learn more about how to #ShineTheLightOnSickleCell visit t.gsu.edu/3Vp4Jgr @SCDAAorg @WEPSCF @CDC #WorldSickleCellDay #SCDC
