Patient-centered health information evangelist and medical device developer. Volunteer CTO at Patient Privacy Rights Foundation.
Watertown, MA
Joined May 2007
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Adrian Gropper retweeted
Why a decentralized health records approach is the way out of today’s byzantine healthcare system open.substack.com/pub/truste…
Adrian Gropper retweeted
After self-hosting my email for twenty-three years I have thrown in the towel 😩
Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.
Adrian Gropper retweeted
There's a school of economics that likens the economy to a computer, one we all power. When we buy something - or walk away - it's data for the computer, which transmits price/demandinformation from consumers to producers to financiers, so that demand can be met with supply. 1/
ALT An icon of a person cracking a bullwhip; their head has been replaced with the frowning head of Uncle Sam. Each ascending peak of the whip's passage has a different icon; in order: ATM, shop, truck, warehouse, shipping containers, container ship, factory. In the background is a blurred out supermarket aisle, stocked high with goods. Image: Lars Frantzen (modified) https://commons.wikimedia.org/wiki/File:Supermarket_full_of_goods.jpg CC BY-SA 4.0 https://creativecommons.org/licenses/by-sa/4.0/deed.en -- Twitter (modified) https://commons.wikimedia.org/wiki/File:Twemoji2_1f3ed.svg CC BY 4.0 https://creativecommons.org/licenses/by/4.0/deed.en -- Thwongterry and Toobaz (modified) https://commons.wikimedia.org/wiki/File:Bullwhip_effect.png CC BY-SA 3.0 https://creativecommons.org/licenses/by-sa/3.0/deed.en
Adrian Gropper retweeted
When it comes to big tech gathering data it takes a lot to shock me these days, but this story (quoted alongside @WNicholsonPrice and other experts) truly shocked me. The story details how Meta collects patient data (incl prescriptions) on password protected hospital portals.
Adrian Gropper retweeted
NEW: Some of the country’s top hospitals have been sending sensitive patient information to Facebook.
These hospitals may have violated HIPAA, experts say. themarkup.org/pixel-hunt/202…
Adrian Gropper retweeted
Failing to deal with this company’s behavior when it started is the biggest public policy failure in the digital space in a generation. Reining it in is that much tougher now that it’s well-funded and so frequently used by government clients. washingtonpost.com/technolog… @drewharwell
Adrian Gropper retweeted
It’s Alive! Colloquy of Mobiles at ZKM pangaro.com/designconversati…
Adrian Gropper retweeted
Commissioner @Vestager and @SecRaimondo were critical of biometric mass surveillance in June.
Will they walk the talk at #TTC tomorrow?
There can’t be EU-US negotiations on something that’s unlawful.
#BanBS #ReclaimYourFace
Adrian Gropper retweeted
So excited that this is actually happening! Data trusts can be new fundamental infrastructure for a society with collaborative governance that actually works, but have thus far been short on real-world implementations. cc: @AnoukRuhaak @jmckenty @agropper @PickaxesS
Seeking Data Trusts Pioneers! Funding from the Data Trusts Initiative will support pilot projects to set up real-world data trusts. Deadline = end September datatrusts.uk/blogs/seeking-… cc @lawrennd @SylvieDelacroix @JeniT
Adrian Gropper retweeted
When it comes to #COVID19Vaccine credentials, what should we be considering? @agropper surveys ten major design concerns and strategies to break down the issue. Read on @THCBstaff thehealthcareblog.com/blog/2…
Adrian Gropper retweeted
The post builds on a false/confused premise that "[Transmitting Provider] tells Alice... she must use.. some... intermediary app." Under CURES, an app needn't be an "intermediary"; *any* patient-approved app can connect. Including apps operated directly by a receiving provider!
Adrian Gropper retweeted
Is being less tasty vegetables our best strategy? blogs.harvard.edu/vrm/2021/0… HTs: @KarenHao, @hanlinliii, @nic_tilly, @bhecht, @snchancellor, @techreview &
@agropper
Adrian Gropper retweeted
New episode of PSA Today with @IdentityWoman and @agropper: privacy fiduciaries, generative layers, human rights, and the three A's of identity: Authentication, Authorization and Audit. #privacy #identity @getspartacus podcasts.apple.com/us/podcas…
Adrian Gropper retweeted
In healthcare, medical records are spread across a maze of systems, making it hard for patients & providers to access & share them. The nonprofit @HIEofOne is working to change that. @dsearls & @shawnp0wers talk w/ @agropper from HIE on FLOSS Weekly.
twit.tv/shows/floss-weekly/e…
Adrian Gropper retweeted
Almost every health care reform attempt over the past three decades has made the mistake of treating doctors as the Enemy.
If you want to fix health care, stop trying to control doctors + give them the power to fix the system
They'll tell you what you need to do.
Adrian Gropper retweeted
publishers should rip all the 3rd party ad tech out and work with one partner or ad server (as few as possible)
great example documented in the article below -- when they ripped it all out (no targeting whatever) their revenues went UP dramatically
wired.com/story/can-killing-…
