ARREY-ECHI retweeted
Webinar Alert 🚨
Join the 3 Aflud Alliance virtual session on Leg ulcers in #SickleCellDisease, featuring patient testimonies and expert interventions on care and management. 💙
📅 25 July 2026 | 11:30 GMT / 13:30 Paris
🔗 Register here: lnkd.in/e-SDyXmy
#GlobalHealth
ARREY-ECHI retweeted
Join voices across Africa on 30th May 2026 as we unite to address the burden of SCD through African-led advocacy, research, innovation, policy, and implementation. Together, lets break barriers, amplify patient voices & build a future where no warrior is left behind.
ARREY-ECHI retweeted
Stigmatisation in #SickleCellDisease remains a significant barrier to equitable #PatientCare.
In the latest #podcast, @LaurelBrumant -Palmer offered a powerful, practical tip on tackling this critical issue.
👉Spotify: lnkd.in/ek5_MiUz
👉YouTube: lnkd.in/ezVPX79a
ARREY-ECHI retweeted
NEW SCD PODCAST! The 3rd edition of Sickle Cell Role Models and Mentors is ON AIR, focusing on women's resilience:
Facing Stigma.
Faith as a key coping tool.
Don't miss this powerful conversation. 👇
📺 YouTube: youtu.be/qjOSa_ANt7M🎧 Spotify: open.spotify.com/episode/0ju…
#SCD
ARREY-ECHI retweeted
🚩Soon on air!
Edition 2 of Sickle Cell Role Models and Mentors is out this Friday on @YouTube & @Spotify!
We talk to an SCD Coach who gives empowering, practical advice on thriving with #SCD.
More📷youtube.com/post/UgkxvSyFbW0…
#SickleCellDiseaseAwareness #SDG3 #podcast
The end of September doesn't end the work. Advocacy has no timeline so let's keep advocating.
The curtain may be closing on #SickleCellDiseaseAwarenessMonth, but our work is far from over.
SCD advocacy must be a year-round commitment.
We need a September-to-September cycle of continuous action. Join us! Many drops make an ocean. 🌊
#SCD #ContinuousAdvocacy #HealthForAll
ARREY-ECHI retweeted
#DidYouKnow? Many kids don't know about #SickleCellDisease?
The school is the FIRST place to promote #SCD awareness.
Let's educate pupils/students to create a stigma-free future & support classmates with SCD.
This is urgent!
#SCDEducation #SCDAwarenessMonth
ARREY-ECHI retweeted
Tommorrow, in #NewYork, #SickleCellDsiease will enter into the discussion table at #UNGA80.
Calling all the warriors in NewYork to attend.
Register here: bit.ly/46jYXSV.
Let through you, the voice of every #warrior be heard.
#SickleCellAwarenessMonth
#SCDAwareness
Important because doing so helps you to make informed decisions.
Saviez-vous que le #dépistagegénétique avant le mariage peut aider à enrayer la transmission de la #drépanocytose ?
En le rendant obligatoire, les nations peuvent s'assurer que les couples sont informés pour faire des choix éclairés pour leur avenir et celui de leurs enfants.
When we voice it out, know that we have already reached our tolerance threshold. Because you don't see it doesn't mean it is not there.
Believe Us when we say we are in pain and show a little empathy 🙏🏾
A painful reality for many with #SickleCellDisease:
"I'm in pain, I need help." "Are you sure? You don't look like it."
The mildest #SCD pain can be an 8/10. When a patient arrives at the ER, they are likely at a 10/10.
Treat every case as a near-emergency.
#PatientAdvocacy
ARREY-ECHI retweeted
Plus de 500 000 bébés dans le 🌎naissent avec la #drépanocytose chaque année, surtout en #Afrique. Sans dépistage néonatal, beaucoup ne survivent pas à l'âge de 5 ans. Il est temps de militer pour un dépistage national obligatoire. Luttons pour le droit de chaque enfant à la vie.
Very necessary
Le #MoisDeLaSensibilisationÀLaDrépanocytose continue !
Connaissez-vous votre génotype ?
C'est la première étape vers une vie plus saine.
Faites-vous dépister et encouragez vos amis à faire de même.
#Drépanocytose #Génotype #ConnaîtreSonStatut #Sensibilisation
ARREY-ECHI retweeted
It's still #SickleCellDiseaseAwarenessMonth!
What better way to raise awareness than through the power of #storytelling?
Listen to my podcast, "Sickle Cell Role Models and Mentors," now on @Spotify!👇
open.spotify.com/episode/71B…
Like, comment and share!
ARREY-ECHI retweeted
🗓️It is #SickleCellAwarenessMonth.
💡 Are you #SickleCellDisease aware?
Do you know what your genotype is?
This month of #September, take a moment to find out where you stand.
🔬 Consider getting tested for sickle cell disease.
#SickleCellAwarenessMonth
We look forward to seeing you all join us for this upcoming webinar.
Save the date!
📢Save the date!
This #SickleCellAwarenessMonth, join our webinar focused on improving sickle cell disease outcomes in Africa.
We will take a deeper look at how uniting our voices can create a powerful impact.
Stay tuned for registration details!
#SickleCellAwareness
ARREY-ECHI retweeted
This September, #SickleCellAwarenessMonth, I will be looking at the powerful journey of patients who have become role models for their peers.
By sharing their experiences, I hope to empower others & inspire a new way of thinking about #SCD.
Stay tuned!👉bit.ly/4oR2UH7ord
ALT Poster of a Sickle Cell Disease podcast called Sickle Cell Role Models and Mentors to start airing this September 2025 and every last Friday of the Month at 12 CET.
ARREY-ECHI retweeted
Love seeing good communication in action, especially for #SickleCellDisease!
Thrilled to see the @WHO's June newsletter featuring their first-ever global guidelines for managing pregnancy with #SCD. This is huge! 👏
Check it out 👉linkedin.com/pulse/all-sickl…
ARREY-ECHI retweeted
Since our inception,UMASCCO has grown into a vibrant network of members from over 31 countries. Meet the passionate individuals behind this movement across Africa
#OneAfrica #OneVoice #OneFight.
UNITÉ et UNITÉ pour la drépanocytose en Afrique.
#UneAfrique #UneVoix #UnSeulCombat
ARREY-ECHI retweeted
Nous sommes heureux de dévoiler nos nouveaux comptes. Nous unissons l’Afrique pour sensibiliser, soigner et rechercher sur la drépanocytose. Rejoignez-nous pour changer l’histoire de la drépanocytose. UNIS pour la drépanocytose en Afrique. #UneAfrique #UneVoix #UnCombat
