Joined June 2016
Webinar Alert 🚨 Join the 3 Aflud Alliance virtual session on Leg ulcers in #SickleCellDisease, featuring patient testimonies and expert interventions on care and management. 💙 📅 25 July 2026 | 11:30 GMT / 13:30 Paris 🔗 Register here: lnkd.in/e-SDyXmy #GlobalHealth
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Join voices across Africa on 30th May 2026 as we unite to address the burden of SCD through African-led advocacy, research, innovation, policy, and implementation. Together, lets break barriers, amplify patient voices & build a future where no warrior is left behind.
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Stigmatisation in #SickleCellDisease remains a significant barrier to equitable #PatientCare. In the latest #podcast, @LaurelBrumant -Palmer offered a powerful, practical tip on tackling this critical issue. 👉Spotify: lnkd.in/ek5_MiUz 👉YouTube: lnkd.in/ezVPX79a
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NEW SCD PODCAST! The 3rd edition of Sickle Cell Role Models and Mentors is ON AIR, focusing on women's resilience: Facing Stigma. Faith as a key coping tool. Don't miss this powerful conversation. 👇 📺 YouTube: youtu.be/qjOSa_ANt7M🎧 Spotify: open.spotify.com/episode/0ju… #SCD
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🚩Soon on air! Edition 2 of Sickle Cell Role Models and Mentors is out this Friday on @YouTube & @Spotify! We talk to an SCD Coach who gives empowering, practical advice on thriving with #SCD. More📷youtube.com/post/UgkxvSyFbW0… #SickleCellDiseaseAwareness #SDG3 #podcast
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#DidYouKnow? Many kids don't know about #SickleCellDisease? The school is the FIRST place to promote #SCD awareness. Let's educate pupils/students to create a stigma-free future & support classmates with SCD. This is urgent! #SCDEducation #SCDAwarenessMonth
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Tommorrow, in #NewYork, #SickleCellDsiease will enter into the discussion table at #UNGA80. Calling all the warriors in NewYork to attend. Register here: bit.ly/46jYXSV. Let through you, the voice of every #warrior be heard. #SickleCellAwarenessMonth #SCDAwareness
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Plus de 500 000 bébés dans le 🌎naissent avec la #drépanocytose chaque année, surtout en #Afrique. Sans dépistage néonatal, beaucoup ne survivent pas à l'âge de 5 ans. Il est temps de militer pour un dépistage national obligatoire. Luttons pour le droit de chaque enfant à la vie.
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It's still #SickleCellDiseaseAwarenessMonth! What better way to raise awareness than through the power of #storytelling? Listen to my podcast, "Sickle Cell Role Models and Mentors," now on @Spotify!👇 open.spotify.com/episode/71B… Like, comment and share!
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🗓️It is #SickleCellAwarenessMonth. 💡 Are you #SickleCellDisease aware? Do you know what your genotype is? This month of #September, take a moment to find out where you stand. 🔬 Consider getting tested for sickle cell disease. #SickleCellAwarenessMonth
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This September, #SickleCellAwarenessMonth, I will be looking at the powerful journey of patients who have become role models for their peers. By sharing their experiences, I hope to empower others & inspire a new way of thinking about #SCD. Stay tuned!👉bit.ly/4oR2UH7ord
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Love seeing good communication in action, especially for #SickleCellDisease! Thrilled to see the @WHO's June newsletter featuring their first-ever global guidelines for managing pregnancy with #SCD. This is huge! 👏 Check it out 👉linkedin.com/pulse/all-sickl…
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Since our inception,UMASCCO has grown into a vibrant network of members from over 31 countries. Meet the passionate individuals behind this movement across Africa #OneAfrica #OneVoice #OneFight. UNITÉ et UNITÉ pour la drépanocytose en Afrique. #UneAfrique #UneVoix #UnSeulCombat
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Nous sommes heureux de dévoiler nos nouveaux comptes. Nous unissons l’Afrique pour sensibiliser, soigner et rechercher sur la drépanocytose. Rejoignez-nous pour changer l’histoire de la drépanocytose. UNIS pour la drépanocytose en Afrique. #UneAfrique #UneVoix #UnCombat
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We’re thrilled to unveil our new social media handles. We're a unifying force across Africa—championing SCD awareness, care, and research. Join us to reshape the SCD narrative across Africa, one story at a time. UNITY and ONENESS for SCD in Africa. #OneAfrica #OneVoice #OneFight
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The World Coalition on Sickle Cell Disease calls on policymakers and global leaders to explicitly address the needs of children, youth and adolescents, with particular attention to Sickle Cell Disease (SCD). Read more: linkedin.com/.../world-coali…...
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We're proud to join the fight against malaria through this impactful walk. Malaria severely affects our warriors, making this cause deeply important. We’ll offer free sickle cell screening and educational sessions for three days at @Parliament_Ug prior to the walk.@MinofHealthUG
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RHIF is on a mission! We're teaming up with local stakeholders to ensure access to sickle cell services across Busoga. Every child deserves quality healthcare. Join us in spreading awareness and support! @BisangaAtwooki @ddanielroy @SickleCellMI #HealthForAll #CommunityOutreach
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On the eve of #WorldWaterDay 2024, this is a very important message to all warriors. Let's also add to that the need to better manage our fresh water as it contributes to our #peace and that of our communities.
RHIF understands that extreme kasana can trigger vaso-occlusive crises for individuals with sickle cell disease. Uganda is facing high temperatures lately, posing a risk to our warriors. So hydrate, let's hydrate, stay in cool environments, wear lightweight clothing #StayHydrated
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