Stem cell transplant recipient, Support and Outreach Manager at @AplasticAnaemia and supporter of @AnthonyNolan. All views are my own.
Cannock, England
Joined July 2011
- Tweets2.1K
- Following1.9K
- Followers635
- Likes2.2K
Really looking forward to finally reading Shirley Nolan’s autobiography this weekend! Such a wonderful
And timely re-release to celebrate fifty years of @AnthonyNolan saving lives.
Soon to be on the shelves at @StaffsLibraries @HednesfordLib once I’ve finished reading it 📗
Looking forward to a busy day, recruiting new potential stem cell donor to the @AnthonyNolan register at @PrideInLondon today! Come along to see us at a Trafalgar Square, next to Canada House and say hi! 🏳️🌈
Hi @RoyalMailHelp , is there a particular reason why I can’t select Hednesford @PostOffice as an option to have a parcel redelivered to, when other local branches are able to offer the service? Ever since the branch opened a few years ago…
Sam Williams retweeted
"I wish they would understand that every day is different that we are not lazy and that we are all trying our best. Just because what I have is not cancer does not mean it is not serious!" - Claire #RareDiseaseDay #RareDiseaseDay2024 #aplasticanaemia
Sam Williams retweeted
What do you wish people understood about your Super Rare condition? "I'm still me." - Paula, living with Dyskeratosis Congenita, a rare genetic disorder
#RareDiseaseDay #RareDiseaseDay2024 @DC_Action
Sam Williams retweeted
What do you wish people understood about your Super Rare condition?
@fanconihope @PNHSupport @CharitySdsuk @CAnaemiaNetwork @AplasticAnaemia @DC_Action
Hi @PostOffice, would it be possible for you to confirm what the in-branch rate would be if I wanted to purchase around £100 worth of Bahrain Dinar, please?
Sam Williams retweeted
📢 NEWS: Belumosudil has been approved by NICE for chronic GvHD
We’ve been calling for better access to GvHD treatments for a long time, so we’re delighted that a new treatment option will now be available to patients across the UK who have not responded to other therapies.
ALT "This new treatment will bring hope to patients who haven't responded to the standard therapies. We are delighted that NHS England are making it available to patients and hope it will help more people to survive and thrive after a stem cell transplant." - Henny Braund MBE, Anthony Nolan's Chief Executive
Hi @easyJet, I’m currently waiting for the delayed EZY 338 BHX-EDI flight. Could you shed any light on the reason for the delay please? Thank you :)
Honoured to be at the Olly Wilkes Memorial Tournament at St George’s Park with @simonwilkes13 @FinnTheFabulou1 and @rianc_harvey to raise awareness of the @AnthonyNolan stem cell register. Here’s to signing up lots of new potential donors! 💚🖤💚
Sam Williams retweeted
The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus
Sam Williams retweeted
We are dedicated to using the findings of the newly launched #RareVoices report to make a difference moving forwards. See our commitments below, and to read in full, click here➡️ bit.ly/3eRNus
Sam Williams retweeted
The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 83% of those surveyed wanted access to current research about their condition, new treatments, and treatment methods. Read more here ➡️ bit.ly/RareV
Sam Williams retweeted
The #RareVoices report found that many people affected by rare bone marrow conditions face significant challenges when trying to navigate the healthcare system. Discover more below ⬇️ bit.ly/RareV
Sam Williams retweeted
The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV
Sam Williams retweeted
Today we’re launching #RareVoices - a new report based on the first ever national community survey of people affected by rare bone marrow conditions. Stay tuned as we uncover important insights. Read the report here ➡️ bit.ly/RareV
Hi @NatWest_Help, my mother in law died recently and my husband, acting as executor of her estate needs to close down her credit card held with NatWest. We’ve managed to close her current account via the online form, but we were told that we couldn’t use this for her credit…
Really excited to be a part of the Olly Wilkes Memorial Football Tournament this year, helping to promote @AnthonyNolan and sign people up to the stem cell register. Massive thanks to @simonwilkes13 and family for inviting me 💚🖤💚
