Stem cell transplant recipient, Support and Outreach Manager at @AplasticAnaemia and supporter of @AnthonyNolan. All views are my own.
Cannock, England
Joined July 2011
- Tweets2.1K
- Following1.9K
- Followers635
- Likes2.2K
Sam Williams retweeted
"I wish they would understand that every day is different that we are not lazy and that we are all trying our best. Just because what I have is not cancer does not mean it is not serious!" - Claire #RareDiseaseDay #RareDiseaseDay2024 #aplasticanaemia
Sam Williams retweeted
What do you wish people understood about your Super Rare condition? "I'm still me." - Paula, living with Dyskeratosis Congenita, a rare genetic disorder
#RareDiseaseDay #RareDiseaseDay2024 @DC_Action
Sam Williams retweeted
What do you wish people understood about your Super Rare condition?
@fanconihope @PNHSupport @CharitySdsuk @CAnaemiaNetwork @AplasticAnaemia @DC_Action
Sam Williams retweeted
📢 NEWS: Belumosudil has been approved by NICE for chronic GvHD
We’ve been calling for better access to GvHD treatments for a long time, so we’re delighted that a new treatment option will now be available to patients across the UK who have not responded to other therapies.
ALT "This new treatment will bring hope to patients who haven't responded to the standard therapies. We are delighted that NHS England are making it available to patients and hope it will help more people to survive and thrive after a stem cell transplant." - Henny Braund MBE, Anthony Nolan's Chief Executive
Sam Williams retweeted
The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus
Sam Williams retweeted
We are dedicated to using the findings of the newly launched #RareVoices report to make a difference moving forwards. See our commitments below, and to read in full, click here➡️ bit.ly/3eRNus
Sam Williams retweeted
The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 83% of those surveyed wanted access to current research about their condition, new treatments, and treatment methods. Read more here ➡️ bit.ly/RareV
Sam Williams retweeted
The #RareVoices report found that many people affected by rare bone marrow conditions face significant challenges when trying to navigate the healthcare system. Discover more below ⬇️ bit.ly/RareV
Sam Williams retweeted
The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV
Sam Williams retweeted
Today we’re launching #RareVoices - a new report based on the first ever national community survey of people affected by rare bone marrow conditions. Stay tuned as we uncover important insights. Read the report here ➡️ bit.ly/RareV
Sam Williams retweeted
Come visit it us at tonight's @BirminghamFA Men's Senior Cup Final at @WFCOfficial when @Coventry_City play @StourbridgeFC .Find out how easy it is to sign up to the @AnthonyNolan stem cell register to potentially SAVE someone's LIFE ⚽️⚽️…
PROGRAMME | It's a big one today - our Senior Challenge Cup Final! 🏆
Download the digital matchday programme here ⬇️
📝 buff.ly/3BhIJKF
Best of luck to both teams! @Coventry_City @StourbridgeFC 👏
Sam Williams retweeted
Appreciation Post 👏👏⚽️⚽️.
Thank You so much for @WolvesWomen supporters who signed up to the @AnthonyNolan stem cell register @BirminghamFA Women’s Senior Cup Final Wolves Women v @StourbridgeWFC ❤️⚽️. …….
Sam Williams retweeted
ANOTHER LIFESAVER EVENT ADDED 👊.
We are so pleased to announce that @BirminghamFA c/o Football Development Officer @LBowles93 has arranged another @AnthonyNolan Donor Recruitment Event at the BCFA Men’s Senior Cup Final on Friday 12th May @WFCOfficial when ………
Sam Williams retweeted
bit.ly/3zNmYD9
WHO WANTS TO BE A LIFESAVER !!!!!
We are proud to announce that we will be holding an @AnthonyNolan Donor Recruitment Event at the @BirminghamFA Women’s Senior Cup Final @StourbridgeWFC V @WolvesWomen Tuesday 9th May at The Molineux…………
Sam Williams retweeted
I asked #ChatGPT to describe graft-versus-host disease in the style of Dostoevsky. It did not disappoint.
Sam Williams retweeted
Do people with aplastic anaemia and/or PNH respond to the Covid-19 vaccines?
Our research indicates, YES!
Catch up with this week's announcement on the first findings from the team at Leeds:
theaat.org.uk/News/do-people…
#aplasticanaemia #covidvaccine #pnh #aplasticanemia
Sam Williams retweeted
NEW: The JCVI have announced that immunosuppressed people can now get their fourth COVID-19 vaccine dose from 3 months after their third dose.
Keep reading for more 👇
Sam Williams retweeted
Alfie is in The Sun today! The family are doing amazing work raising awareness of the additional difficulties faced by mixed-race people with aplastic anaemia in finding a matching donor. Please swab and share! thesun.co.uk/health/16468969…
Sam Williams retweeted
We are proudly supporting the @NHSConfed #nottoomuchtomask campaign.
#aplasticanaemia #COVID19 #WearAMask
Sam Williams retweeted
Number of times @BorisJohnson mentioned the immunocompromised, for whom the vaccine is unlikely to work as well, in this evening’s press conference = 0
“To those who say we should delay again, the alternative to that is to open up in winter… or not at all this year”
PM says final decision on easing lockdown in England will be taken on 12 July as he sets out his plans to give people "time to prepare"
bbc.in/3qMbE3z