Guy Eakin retweeted
Hey #Lipedema research junkies – we are trying something new – posts about all newly published research! Since Twitter doesn't always smile on automated posts, we're testing this at a separate account, @LipedemaBot. Give it, and us, a follow and let us know how it's working!
Guy Eakin retweeted
New research! #Lipedema pain is often characterized as hypersensitivity to otherwise normal stimuli. This LF-funded study found that Lipedema-related pain is not simply a response to tissue growth or swelling. Learn more: ow.ly/ymB850M2J60
#lymphedema #lipoedema #obesity
Guy Eakin retweeted
“Do children get #Lipedema? Maybe. But every woman with Lipedema was once a child. When we look at her childhood photographs, we are left with the sense that we might have done something differently if we’d known what to look for.” – CSO Guy Eakin, LF’s 2022 Scientific Retreat.
Guy Eakin retweeted
Great to be a part of such a vibrant and growing community
So what has 140 legs and a plan for Lipedema research? Our @LipedemaFndn annual retreat attendees!
The next five years of #lipedema research starts tonight!
Guy Eakin retweeted
Do patients with "atypical" demographics have more severe disease for biologic reasons? Does it have to do with missed and delayed diagnoses?
Are we sure that what we've learned about the epidemiology of rheumatic diseases is true? Should we re-evaluate what we think we know?
Why do patients with "non-textbook" disease presentation have worse outcomes? Julia Simard @RheumEpi @StanfordMed kicks off the #LancetSummitRheum session on #SLE with a fascinating talk on implicit bias.
Guy Eakin retweeted
Kasi did a terrific job articulating what it means to live with lipedema. But also the urgency to get more attention on Lipedema!
Top need for #lipedema is clinical biomarker that can be detected EARLY. Patients are misdiagnosed for years & have to be their own advocates (pt brought in lipedema brochure to dr after decades of no diagnosis). @LipedemaFndn has educated us on this biomarker need. (2/3)
Guy Eakin retweeted
@US_FDA & @ArthritisFdn co-sponsored #osteoarthritis drug development workshop recap is published!
Thanks to all partners, co-authors, speakers, participants, and patients!
sciencedirect.com/science/ar…
Guy Eakin retweeted
@RohanBhandariMD and Dr. Jerry Bartholomew from @ccfvascmed presenting their prelim biomarker data on #lipedema and #lymphedema at the Fat Disorders Resource Society today. @CCLRI
Guy Eakin retweeted
New podcast sheds light on #Lipedema! Dr. Thomas Wright discusses the general lack of awareness of Lipedema on this St. Louis Public Radio podcast. Please listen and share:
news.stlpublicradio.org/show…
#lipedemaresearch #research
Guy Eakin retweeted
Dr. René Hägerling, our latest Research Award recipient, aims to unravel the underlying histological alterations in Lipedema to develop a diagnostic test based on the 3D-histology of tissue samples. Learn more: lipedema.org/lf4421
#lipedema #lipedemaresearch #researcher
Guy Eakin retweeted
New #Lipedema study results! Pain persists for some Lipedema patients after bariatric surgery. Learn more here: library.lipedema.org/bibliog…
#lipedemaresearch #lipedemaawareness #lipedemaeducation
Guy Eakin retweeted
Become an Admirer of Adipose! A Fan of Fat! New review in the NEJM #NEJM #NIDDK #BAT #WAT nejm.org/doi/full/10.1056/NE…
Guy Eakin retweeted
Excited to start patient recruitment!
Is there a biological basis for pain associated with Lipedema-impacted tissue? @TAMU_Rutkowsk @tamumedicine, and Dr. Leopoldo Cobos-Salinas, MD, our latest Research Award recipients, aim to find out. Learn more: lipedema.org/lf4521
#lipedema #lipedemaresearch #researchawards
Guy Eakin retweeted
LATEST NEWS: SPECIALISED LIPOSUCTION FOR LIPOEDEMA - LEGAL NEWS FROM THE USA news.bloomberglaw.com/pharma…
Guy Eakin retweeted
Native Freshwater Fish Color Palettes are my new favorite thing #LoveYourLocalFish #FreshwaterFishAppreciation #PeachStateFish
Guy Eakin retweeted
Defining a #lipedema care team can be a challenge. "Who diagnoses and treats lipedema?" is one of the most frequent questions we see. If it's a question you're asking, try this! lipedema.org/findspecialists #lipedemaeducation #lipedemaawarenessmonth2021
Guy Eakin retweeted
#lipedema patients can experience #swelling, easy #bruising, #fatigue, and #pain that varies in both duration and intensity. Common features also include #hypermobility and fatty pads below the knees.
#lipedemaawareness #lipedemaawarenessmonth2021 #lipedemaeducation
Guy Eakin retweeted
What we don’t know about #lipedema: causes, prevalence, which medical specialists will diagnose & treat
What we don’t have: diagnostic test, proven treatments, mouse model, medical coding
What we can do: research!
Help build the research network: lipedema.org/registry
