Leela Play (@leelaplays) profile picture

Leela Play

@leelaplays
Joined April 2011
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Photo by Leela Play (@leelaplays)Photo by Leela Play (@leelaplays)Photo by Leela Play (@leelaplays)Photo by Leela Play (@leelaplays)Photo by Leela Play (@leelaplays)
Vote! 🎉🙏🏻🎉
Image from Janet Dafoe (@JanetDafoe)
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TIME: 'What It’s Like to Have Long COVID As a Kid' 'It started when my brain gave out on me in algebra class one January day in 2022. I couldn’t figure out a simple math problem..' 'Alana Kaufman is a high school senior in Anchorage..' time.com/7160814/long-covid-…
What It’s Like to Have Long COVID As a Kid

What It’s Like to Have Long COVID As a Kid

"I had no idea how hard a road lay ahead," writes teenager Alana Kaufman.

time.com
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As part of our Triple Giving November campaign, we are excited to share an interview with David Systrom, MD, discussing a muscle biopsy study to understand the molecular mechanisms behind post-exertional malaise (PEM). Learn more 👉ow.ly/a30850U0EoE
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🧵 1/ 🔗 Preprint: Amyloid Clots in Stroke - Excited to share our latest study with @dbkell as lead, on ischemic stroke! Co-authors include a neurologist and a neuroscientist: doi.org/10.1101/2024.11.01.2…
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alifehidden.com/2024/11/05/r…
The Trouble With Recovery Stories

The Trouble With Recovery Stories

Recovery stories have been popular in the media lately.  Most prominent has been actress and comedian Miranda Hart (a past supporter of this blog), sharing her experience of living with ME and…

alifehidden.com
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Leela Play retweeted
charlos (@loscharlos) profile picture
charlos@loscharlos18 Oct 2024
“Matthew Fitzgerald, a 28-year-old former engineer at Tesla, described his #LongCovid impairment during a clinic visit: ‘I’m a shell of myself. My physical issues aren’t half as bad as my brain problems. You can say brain fog, but that doesn’t come close to doing it justice.’”
Screenshot of an article headline in Nature reading, “How Long COVID could lift the fog on neurocognitive disorders” Date: October 2, 2024

ALT Screenshot of an article headline in Nature reading, “How Long COVID could lift the fog on neurocognitive disorders” Date: October 2, 2024

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Smartphones Ruined Your Eyesight. Lockdowns Ruined Your Heart. Vaccines Ruined Your Whatever Stops Strokes. Remote Work Ruined Your Posture. Airpods Ruined Your Hearing. All During A Pandemic Which Didn’t Harm You At All. What Bad Luck.
Some tech stuff Headline: Smartphones Ruined Your Eyesight. Lockdowns Ruined Your Heart. Vaccines Ruined Your Whatever Stops Strokes. Remote Work Ruined Your Posture. Airpods Ruined Your Hearing. All During A Pandemic Which Didn’t Harm You At All. What Bad Luck. Story by Bradley Drawn and Guy of Gisborne Photo from unsplash

ALT Some tech stuff Headline: Smartphones Ruined Your Eyesight. Lockdowns Ruined Your Heart. Vaccines Ruined Your Whatever Stops Strokes. Remote Work Ruined Your Posture. Airpods Ruined Your Hearing. All During A Pandemic Which Didn’t Harm You At All. What Bad Luck. Story by Bradley Drawn and Guy of Gisborne Photo from unsplash

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This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. theguardian.com/commentisfre…
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? |...

Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? |...

Chronic fatigue syndrome is as physiological as a broken leg. ​We must learn all we can from this tragic case, says Guardian columnist George Monbiot

theguardian.com
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We discuss #BrainHealth and #LongCovid in Episode 2.🧠 contagionlive.com/view/long-… #NeuroTwitter #MedTwitter @AANmember @Jacobs_Med_UB
Image from S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic (@dysclinic)
Contagion (@Contagion_Live) profile pictureContagion@Contagion_Live18 Oct 2024
Episode 2 of our Long COVID roundtable collaboration with @neurology_live is out! Dr. @Ravi_Ganesh_MD, Dr. @dysclinic, and Dr. @MVGutierrezMD underscore the need for awareness and action regarding #LongCOVID and its impact on brain health. contagionlive.com/view/long-…
Image from Contagion (@Contagion_Live)
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ICYMI. This is a 15-minute documentary by @GrantWakefield4 on #LongCovid. It captures the story the brave Rosie who has had Long Covid for 3 years and her father @baldypidge , with commentary on the science of Long Covid from me Link: vimeo.com/1017483971
THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER

THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER

Self-funded short documentary about the true nature of Covid / Sars-CoV-2, and the impact that Long Covid has had on one family. Derived from material photographed in Sept. 2024 for the feature...

vimeo.com
Grant Wakefield (@GrantWakefield4) profile pictureGrant Wakefield@GrantWakefield415 Oct 2024
My new short documentary about the true nature of Sars-CoV-2 and the impact of Long Covid on one family. Self-funded, presented as a public service and copyright free. Download function is enabled at Vimeo. Please copy / share / post as you see fit vimeo.com/1017483971
THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER

THE UNRAVELLING - A SCIENTIST . AN ARTIST . A FATHER

Self-funded short documentary about the true nature of Covid / Sars-CoV-2, and the impact that Long Covid has had on one family. Derived from material photographed in Sept. 2024 for the feature...

vimeo.com
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Leela Play retweeted
Eric Topol (@EricTopol) profile picture
Eric Topol
@EricTopol19 Oct 2024
An elegant @Nature study by @AkassoglouLab has illuminated our understanding of the role of fibrin (component of blood clots), #SARSCoV2, and brain inflammation in Covid and #LongCovid. This discovery and more in the new Ground Truths podcast, with transcript, key figures (such as as the one below) and citations. Open-access. Link in my profile.
Image from Eric Topol (@EricTopol)
Image from Eric Topol (@EricTopol)
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Leela Play retweeted
charlos (@loscharlos) profile picture
charlos@loscharlos18 Oct 2024
“The American Medical Association’s top journal, JAMA, in August published a key new study and editorial about pediatric #LongCovid. The editorial cites several robust analyses and concludes that.. LC symptoms appear to occur after about 10-20% of pediatric infections.”
Screenshot of an article headline in the outlet Scientific American reading “Long Covid is harming too many kids.. pediatric long Covid is more common than many thought, and we keep letting kids be in infected with new variants” Date: October 18, 2024

ALT Screenshot of an article headline in the outlet Scientific American reading “Long Covid is harming too many kids.. pediatric long Covid is more common than many thought, and we keep letting kids be in infected with new variants” Date: October 18, 2024

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Comment in a Guardian column by author, journalist, and activist George Monbiot, about scientists who are promoting a biopsychosocial approach to #MECFS and who have closed ranks to defend flawed science.
Image from Sten Helmfrid 🇺🇦 🇬🇱 (@StenHelmfrid)
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Leela Play retweeted
PolyBio (@polybioRF) profile picture
PolyBio
@polybioRF18 Oct 2024
PolyBio director Amy Proal & scientists David Putrino, Chris DuPont & Marcello Freire were in attendance at last night’s Cohen Foundation meeting. They deliberated on new solutions in #LongCovid #Lyme+ and #MECFS . @microbeminded2 @drmfreire @PutrinoLab
4 scientists stand together next to a podium that reads “Mount Sinai”

ALT 4 scientists stand together next to a podium that reads “Mount Sinai”

The agenda for the Cohen Health Consortium.

ALT The agenda for the Cohen Health Consortium.

A tall grey hospital building

ALT A tall grey hospital building

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Important 🧵on our new peer-reviewed paper: The pandemic is as bad as it ever was for babies - in year to Aug 2023, 6,300 babies under 1 were admitted to hospital wholly or partly BECAUSE of Covid. They are ONLY age group where admissions have NOT gone down over time 1/17
Image from Prof. Christina Pagel - @chrischirp.bsky.social (@chrischirp)
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A new @23andMeResearch study found 3 gene regions enriched in those with #longCOVID. They were also enriched in those with: - #Fibromyalgia - #MECFS - #Lupus (among other conditions) These findings could help us understand the causes of Long COVID...🧵
Image from Brain Inflammation Collaborative (@BrainInflCollab)
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Dear Miranda,, by @LongCovidAdvoc open.substack.com/pub/longco…
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People with #dysautonomia can experience a wide range of debilitating symptoms that impact their quality of life and ability to perform routine tasks many people take for granted. Learn more: dysautonomiainternational.or… #31DaysofDys
Graphic with Dysautonomia International logo listing various parts of the body and how dysautonomia can impact each one, including the brain (fatigue, migraines vertigo, etc.), heart (tachycardia, bradycardia, etc.), stomach (bloating, nausea, etc.) , blood vessels (hypotension, hypertension, poor perfusion, etc.)

ALT Graphic with Dysautonomia International logo listing various parts of the body and how dysautonomia can impact each one, including the brain (fatigue, migraines vertigo, etc.), heart (tachycardia, bradycardia, etc.), stomach (bloating, nausea, etc.) , blood vessels (hypotension, hypertension, poor perfusion, etc.)

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New @CMIJournal study showing association between post-acute SARS-CoV-2 protein in blood and #LongCOVID. Data from 4 cohorts, including #NIHRECOVER and @UCSF #LIINC. Need more research ASAP to see if useful as a biomarker for trials!
Image from Michael Peluso, MD (@MichaelPelusoMD)
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