ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
A check-in to give timelines.After final fund curation by @givewithkernls and @polybioRF, funds will be received as a donation by my university.Luminex must provide quote; after acceptance and negotiation on cost, cytometer will be custom- built. This should take minimum 4 months
We did it! Our fundraiser to buy @resiapretorius a flow cytometer has reached its final goal! Thank you to every person who donated, even under difficult financial circumstances. Huge thanks to Balvi (@VitalikButerin) for matching donations, and @givewithkernls for their support
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
This is fantastic research on the amyloid nature of the spike protein
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ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
How can people protect themselves: masks, vaccines, ventilation and if/when you get that positive test #StopRestPace 🧵ends
@MEActNet meaction.net/stoprestpace/
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Another one. They will keep coming. #microclots are not the full story but they are a big part of it. They are measurable. They are treatable. Everyone needs access to this #LongCovid #MECFS #TreatLongCovid #ResearchLongCovid
After two years of #LongCovid, I finally made it to Mulheim and the kindest, most compassionate doctor @BeateJaegerMD. Unsurprisingly, my blood contains microclots and hyperactivated platelets. It’s confronting but at the same time, it’s a relief to have one treatment target. 1/
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
24 years ago a virus left me with a Long COVID-like condition. What life is like as a working mom dealing with the fallout - FORTUNE apple.news/A8nNOYLXJRD2sdO7_…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Progress isn’t always about getting better. Sometimes it’s about bouncing back.
Success is not only the peaks you reach—it’s the valleys you conquer. Every experience of enduring adversity and overcoming obstacles is a meaningful accomplishment.
Resilience is a form of growth.
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Research alert: preprint article posted today provides initial indication that people with #MyalgicEncephalomyelitis have microclotting issues similar to those detected in #LongCovid.
Thanks to @mecfs_sa for supporting this research.
#microclots #pwme
researchsquare.com/article/r…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
@polybioRF, @mecfs_sa, and all our donors: how will we ever be able to thank you enough? Without your generosity and support we would not have been able to fund this project. Our participants: Thank you!
We want to give a special shoutout to @cstroeckw and family who were one of the donors for this project. They were so generous and kind with their willingness to help make the research happen! 🙌
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
‘Living with Myalgic Encephalomyelitis: An Invisible Disability’, a new comic focussing on people’s experiences of living with ME, developed by Dundee academics in partnership with comic artists and people who have ME. Follow link to download. #MECFS
dundee.ac.uk/stories/invisib…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
OMF is delighted to welcome Jillian Payne as the newest member of our team! Please join us in welcoming Jill, OMF's new Chief Development Officer. Read more about Jillian: bit.ly/3zpKwO4
#WomeninBusiness #MECFS #LongCOVID #Philanthrophy
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
ME/CFS Research Published 31 May - 6 June 2022 - includes audio commentary from @kabinpears
5 new ME/CFS studies & 16 studies on Long Covid.
meassociation.org.uk/u5k3
#pwME #MECFS #MyalgicE #Research #LongCovid #PostCovid
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Today the Harvard Medical School (HMS) Community honors the memory of Ronald G. Tompkins by lowering the HMS flag to half-staff.
Learn more about Dr. Tompkins's tremendous life and legacy: bit.ly/3aNDdp3
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Ron leading the way in innovative ME/CFS research.
Ron Davis's ME/CFS Moment: The "Core Technology Disrupter" Gets a Win - Health Rising healthrising.org/blog/2022/0…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Amazing speech from @LisaAMcCorkell! 😭
“The benefit of millions of people getting sick all at once is that we have remarkable access to people and power that others have struggled to get for a long time. I want to make sure I am representing those people.” #LongCovid #pwME
.@LisaAMcCorkell is co-founder of @patientled Research Collaborative, a patient advocate & researcher, and a person with Long COVID. We were truly honored to have her join us for #MillionsMissing. #LongCovid #MECFS #pwME
See the full video: youtu.be/U4J-d2DHz6U
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Ron Davis’s ME/CFS Moment: The “Core Technology Disrupter” Gets a Win #MECFS healthrising.org/blog/2022/0…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
Ron Davis's ME/CFS Moment: The "Core Technology Disrupter" Gets a Win - Health Rising healthrising.org/blog/2022/0…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
#MyalgicEncephalomyelitis
“The presence of fibrinaloid microclots & associated coagulation issues are present in ME/CFS, & point to a systemic vascular pathology and endothelial inflammation.” “..the fibrinaloid burden in ME/CFS seems to be less than that present in #LongCovid”
So it turns out we did find “something in the blood” of #ME/CFS patients: fibrinaloid microclots + hyperactivated platelets (that you can see with your own eyes). Thank you so much to @polybioRF donors who helped support part of the study: researchsquare.com/article/r…
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
We believe that ME/CFS is also a vascular disease. Hypercoagulation is a hallmark of systemic and chronic inflammation. Now we must find the origins driving the vascular pathology. Next: proteomics
ME CFS FOUNDATION SOUTH AFRICA #ImHopeful retweeted
ME/CFS preprint is posted We conclude that ME/CFS is accompanied by substantial and measurable changes in coagulability, platelet hyperactivation, and fibrinaloid microclot formation. However, microclot load was not as prevalent as was previously noted in longcovid
Preprint with @resiapretorius and @microbeminded2 showing massive #microclots and platelet hyperactivation in #MECFS, much as with #LongCovid #TeamClots #pwME #pwLC researchsquare.com/article/r…