Mom, Wife, Caregiver and now Widow b/c of ALS. 2019 Elizabeth Dole Fellow from Texas. ALS and Veteran Advocate. #tomstroops
Texas, USA
Joined June 2013
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Lara Garey retweeted
Are you waiting months to see a neurologist?
If you are navigating Alzheimer's, Parkinson's, Huntington's or ALS, our doctors are available within weeks.
Appointments still available for March.
@synapticure
synapticure.com?utm_campaign…
Lara Garey retweeted
Congress has voted to pass the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act! Now the bill is on its way to the President’s desk. Use this action to thank your Senators and Representatives who voted for the bill: iamals.org/e-dole-thank-you-…
Lara Garey retweeted
"Breaking news: tonight the House of Representatives will vote on the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act! Take a moment to remind House members one more time why the ALS community needs this bill to pass!
iamals.org/elizabeth-dole-ho…"
Lara Garey retweeted
Lara's husband Tom Garey was an Air Force veteran, and he was diagnosed with ALS at 47 years old. Among tons of other advocacy, Lara co-leads the Veterans Team at I AM ALS in Tom's memory. We love you, Lara! #CallingAllCaregivers Read more of Lara's story: iamals.org/stories/lara-gare…
Lara Garey retweeted
If you're a Veteran who has been diagnosed with ALS, you have numerous resources available to you through the VA. The Veterans Team created this checklist to help you get all the benefits you are entitled to from the VA. iamals.org/wp-content/upload…
Lara Garey retweeted
This Veterans Day, we thank all Veterans for their service, with special appreciation for those who are now living with ALS. ALS is considered a 100% service-connected disease. #VetswithALS #VeteransDay
Lara Garey retweeted
The Elizabeth Dole Home Care Act, if passed, would remove a cap on home care spend for Veterans, which would allow more Veterans living with ALS to stay in their homes rather than care facilities. Tell your elected officials to support this bill: iamals.org/action/elizabeth-…
Lara Garey retweeted
Senator Bob Dole had a goal to help at least one person every day. To honor his legacy, on what would’ve been his 101st birthday, we spent yesterday serving our community. ❤️
Lara Garey retweeted
We urge passage of the Sen. Elizabeth Dole 21st Century Veterans Healthcare & Benefits Improvement Act (HR8371), but some in Congress stand in opposition of this landmark legislation. This comprehensive veteran's package includes several important provisions.
Contact Congress. votervoice.net/mobile/Americ…
Lara Garey retweeted
Help us take action to get Congress to pass the Elizabeth Dole 21st Century Veterans Healthcare and Benefits Act. Our Veterans with ALS need help THIS YEAR so they can remain at home with their families for their care. iamals.org/action/elizabeth-…
Lara Garey retweeted
As Dr Appel has been saying for years ...
#TRegs work to slow the inflammatory response & progression in #ALS.
🔹Prior to TReg treatment =
Patients were LOSING an average of -1.1 pts/month on ALSFRS-R
🔹After 24 weeks of TRegs =
Patients REGAINED average of +0.04 pts/month
🔹After 48 weeks of TRegs =
Patients SLOWED Progression to average of −0.13 pts/month
🔹Over the entire 48 weeks, trial participant:
#1 regained 11 pts - (47 yo HF - C9 limb onset)
#2 lost 5 pts - (54 yo WM - sporadic limb)
#3 lost 5 pts - (57yo WF - sporadic bulbar)
#4 lost 7 pts - (84 yo HF - sporadic bulbar)
@CoyaTx's small 4-person P1 trial had astounding preliminary efficacy results. Thanks to Howard Berman for investing in this amazing technology.
⬇️STUDY:
frontiersin.org/journals/neu…
#EndALS
#DrugsinBodies
Coya Therapeutics announced today the publication of a peer-reviewed manuscript showing proof of concept of one of our lead candidates in ALS in the medical journal @FrontiersIn Neurology. Read more in our latest press release: ir.coyatherapeutics.com/news…
$COYA #CoyaTherapeutics
Lara Garey retweeted
.@WWP is proud to support the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, which contains numerous provisions to improve the delivery of services and benefits for veterans, their families, and caregivers. wwp.news/3WOK5sr
Lara Garey retweeted
.@JerryMoran and @RepBost on Tuesday unveiled the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, a 315-page package of legislative priorities to support military veterans and their families bit.ly/4btf9Te
Lara Garey retweeted
The bipartisan package that I introduced, The Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, will enhance and reform the delivery of services at the VA by ultimately putting all #AZ06 veterans, their families, and their survivors first.
Lara Garey retweeted
What an exciting day for our #HiddenHeroes caregiver community in El Paso, TX as we officially launch our "I Am A Caregiver" campaign! 🎉👏
If you are a caregiver and want to learn more about the resources and support available to you, please visit HiddenHeroes.org.
Lara Garey retweeted
"Disabled Veterans with significant home-care needs must have access to more services via @DeptVetAffairs." -PVA's Heather Ansley
We appreciate progress on the Dole Act as PVA + 48 orgs urge Congress for final passage as #Veterans need help now.
More: hiddenheroes.org/news/elizab….
ALT Caregiver Mark uses a hoyer lift to help transfer PVA Immediate Past President Charles Brown into his power wheelchair. In the lower right-hand corner is a white semi-translucent Paralyzed Veterans of America logo.
Lara Garey retweeted
You've heard us say that military veterans are more than 2x as likely as the general population to be diagnosed with ALS. This resource will help you understand the risk of ALS that veterans face. iamals.org/get-help/understa…
