@ukcfpg

The United Kingdom and Ireland Cystic Fibrosis Pharmacy Group. Pharmacists and Pharmacy Technicians dedicated to the care of all people with cystic fibrosis.

 United Kingdom
Joined April 2016
  • Tweets292
  • Following196
  • Followers327
Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on @bbc5live ➡️ ow.ly/pt4W50SaJAE #cysticfibrosis #cfnews #creon
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So pleased to present the results of part 2 of the AtOM CF Study at @ECFSConference #ECFS2024 thanks to all the patients who took part from @CFLeeds and @cf_newcastle @NIHRresearch @MedicinesDavid @DrIanKellar @nikki_rou
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Yes! Excellent @ukcfpg @UKCPAResp @CHS_Pharmacist @BryonyMiller1 @natashahudson_1 @NUHPharmacy
ERS publications@ERSpublications22 Dec 2023
Breathe: Pharmacists deliver high-level and impactful medicines-related care that improves patients’ outcomes and healthcare experience. This is most evident in respiratory medicine when they are imbedded within the MDT and able to also support colleagues. bit.ly/3sd8sD9
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Thanks @cftrust for a great workshop on CF & ageing (and a yummy lunch!) Coming home with lots of new research ideas💡@NUH_CFUnit @NUHPharmacy @ukcfpg #RespIsBest
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We will be commenting @ukcfpg as registered stakeholders, but encourage all group members to read and comment on the guidance
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Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence. It's another example of how #genomics is changing the way #pharmacists work. 🧬👉bit.ly/48tHIP5 #WorldPharmacistsDay
Image celebrating World Pharmacist Day. The image talks about a genetic test which can identify which cystic fibrosis patients have a genetic change which means that they would react badly to a common antibiotic. That reaction would cause permanent hearing loss.

ALT Image celebrating World Pharmacist Day. The image talks about a genetic test which can identify which cystic fibrosis patients have a genetic change which means that they would react badly to a common antibiotic. That reaction would cause permanent hearing loss.

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NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs @NUH_CFUnit @DrJenTaylor246 @tandfpsychology #ProfDoc #Healthpsych 👉 tandfonline.com/doi/full/10.…

“I think most people feel like healthcare professionals tell them to take their treatments and...

Previous research exploring patient-practitioner communication in relation to adherence in cystic fibrosis (CF) is limited. This UK study explored the views of adults with CF on how treatment adher...

tandfonline.com
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CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK @NHSEngland @ukcfpg @cftrust
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A refresh of the top 10 research priorities in cystic fibrosis | Thorax thorax.bmj.com/content/early…
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If anyone from the @ukcfpg group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on @NHSnetworks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.
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NEW EPISODE - Cystic Fibrosis A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.
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New job alert! Fantastic opportunity to join @NUH_CFUnit as Local @cfhealthhub Behaviour Change Lead in cystic fibrosis @NUH_CFUnit 👉 bit.ly/415rYhe Please DM me for more info!😃 @acpcf @divhealthpsych @ukcfpg @bda_cf @NUHTherapies @ResearchNuh @NUH_Respiratory @cftrust
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Might be of interest @ukcfpg @ecfpg @UKCPAResp
Lucy Galloway@Lucy12as7 Apr 2023
NHS pharmacists and techs involved in genetic or genomic testing or interpreting results (now or in the future)? Free taught course in genetic counselling now open for applications
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Might be of interest @ukcfpg @UKCPAResp
The Vyas Lab@VyasLab27 Dec 2022
Check out our recent review focused on human airway epithelium responses to invasive fungal infections! mdpi.com/2032890 #mdpijof via @JoF_MDPI
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Great to see this poster up at #BTSWinter2022: results of a national #CFHealthHub survey to understand the experiences of adults with #cysticfibrosis of obtaining repeat supplies of nebulised medicines. Well done @APaedPharmacist @sophie_doph @leaping_badger et al! @ukcfpg @acpcf
Amanda@APaedPharmacist24 Nov 2022
Poster up #BTSWinter2022
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Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
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Delighted that the new @cftrust Pharmacy Standards in Cystic Fibrosis Care are now publicised here - cysticfibrosis.org.uk/sites/… Thanks to all those @ukcfpg who contributed to the development.
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Replying to @EditorNPPG
@ukcfpg @ecfpg
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One for everyone affected by CF personally and professionally to complete @ukcfpg We know that getting the view of the CF community has helped shape research over the last few years… now let’s take it further!
Question CF@questionCF21 Sep 2022
Replying to @questionCF
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurv… the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
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Replying to @acpcf
@acpcf @ukcfpg @CFNA16 @bda_cf
Perceptions of NGS for CF Screening@CFScreeningNGS5 Aug 2022
Are you a doctor, nurse, physio, dietitian, teacher, social worker or other professional who has worked with children with CF and their families? Please take a look at our survey on extended sequencing for CF screening qualtrics.kcl.ac.uk/jfe/form… @BDA_Dietitians @NAHTnews @TheACPRC
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