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VASCAPA_asbl

@VASCAPA

La Vascular Anomaly Patient Association (VASCAPA) est une a.s.b.l qui a pour objet d’aider les personnes souffrant d’anomalies vasculaires .

 Brussels, Belgium
vascapa.org
Joined January 2013
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Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)Photo by VASCAPA_asbl (@VASCAPA)
VASCAPA_asbl retweeted
VASCERN (@vascern) profile picture
VASCERN@vascern22 Oct 2020
The #VascularAnomalies #VASCA WG finish their first session @ #VASCERNDays2020! 😊 New #publications, PoK #videos for #patientpathways, #registry, #online #seminars + more! #ERNeu @MiikkaVikkula @leoschultzekool @HevasNederland @LGDA_EU @CMTCOVM @HecovanNijmegen @pupistuff
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Day 1 of #ECRD2020 online is finally here! We are so excited to welcome the nearly 1,500 attendees to the custom-built online platform. To all of you attending - share your ECRD photos on Twitter with #ECRD2020 and they will appear on the social media wall in the platform!
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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Are you not impressed? 30.000 Edelweiss origami filmed by the president of #VASCAPA , witnessing the devotion of all to the cause of sharing on this rare day of 29 February dedicated on rare diseases #vascapa #vascern #vacure #radiorg Still indifferent?
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VASCAPA_asbl retweeted
RareShare (@RareShareOrg) profile picture
RareShare@RareShareOrg29 Feb 2020
This #RareDiseaseDay, we want to draw attention to #rarediseases while celebrating communities coming together to support each other through tough times. Find your community on @RareShareOrg: rareshare.org/communities
Image from RareShare (@RareShareOrg)
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#RareDiseaseDay offers us the opportunity to together care for our brothers and sisters who are ill, to integrate research, medical care, and social assistance so that they might enjoy equal opportunities and lead a full life.
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The GEHU team of V.A. cure at the Brussels center #radiorg Rare Disease event. What an atmosphere! The future is great. #vacure #vascern #deduve #RareDiseaseDay #vikkulalab
V.A. Cure (@VACure1) profile pictureV.A. Cure@VACure129 Feb 2020
we are celebrating #RareDiseaseDay ! Come and see the origami carpet!
Image from V.A. Cure (@VACure1)
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Les représentants du ⁦@vascern⁩ lors du ⁦@rarediseaseday⁩ organisé par ⁦@Radiorgbe⁩ à BXL ⁦@MiikkaVikkula⁩ ⁦@VASCAPA⁩ ⁦@RomainAlder⁩ ⁦@F101Genomes⁩
Image from Association Belge du Syndrome de Marfan, ABSM asbl (@marfanbe)
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Happy networking at the Rare Disease day in Brussels. #gehu phd students with the president of the patient association #VASCAPA for #vascular anomalies. #vascern #vacure #radiorg #rarediseaseday
Image from Miikka. Vikkula (@MiikkaVikkula)
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Happy Rare Disease Day to everybody.
V.A. Cure (@VACure1) profile pictureV.A. Cure@VACure111 Feb 2020
Department of Human Molecular Genetics in de Duve Institut supports #RareDiseaseDay ! Join us ! #VACure #ITN #VikkulaLab
Image from V.A. Cure (@VACure1)
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Hopefully awareness on Rare Diseases now increases. So much is needed for so many people affected.
Miikka. Vikkula (@MiikkaVikkula) profile pictureMiikka. Vikkula@MiikkaVikkula29 Feb 2020
What a wonderful happening. Beautiful. Everybody participating and tourist wondering how Edelweisses ended up into the center of Brussels 🧐#radiorg #vacure #vascapa #uclouvain #eurordis
Image from Miikka. Vikkula (@MiikkaVikkula)
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What a wonderful happening. Beautiful. Everybody participating and tourist wondering how Edelweisses ended up into the center of Brussels 🧐#radiorg #vacure #vascapa #uclouvain #eurordis
Image from Miikka. Vikkula (@MiikkaVikkula)
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Wonderful & beautiful, all for rare disease #VASCAPA #VASCERN
Image from Laurence Boon (@LaurenceBoon1)
Image from Laurence Boon (@LaurenceBoon1)
Image from Laurence Boon (@LaurenceBoon1)
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Image from Laurence Boon (@LaurenceBoon1)
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Some important numbers for everybody to think of. Rare diseases are not that rare!
Juan Lage (@JuanLage) profile pictureJuan Lage@JuanLage29 Feb 2020
#RareDiseaseDay #Bruxelles @VASCAPA @vascern
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
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Magnificent. A beautiful carpet of rare unique origami flowers. Just like all with a rare disease.
Juan Lage (@JuanLage) profile pictureJuan Lage@JuanLage29 Feb 2020
#RareDiseaseDay #Bruxelles @VASCAPA @vascern
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
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VASCAPA_asbl retweeted
Juan Lage (@JuanLage) profile picture
Juan Lage@JuanLage29 Feb 2020
#RareDiseaseDay #Bruxelles @VASCAPA @vascern
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
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VASCAPA_asbl retweeted
Juan Lage (@JuanLage) profile picture
Juan Lage@JuanLage29 Feb 2020
#RareDiseaseDay #Bruxelles @VASCAPA @vascern
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
Image from Juan Lage (@JuanLage)
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VASCAPA_asbl retweeted
VASCERN (@vascern) profile picture
VASCERN@vascern6 Jan 2020
New year = 3 new #PillsofKnowledge #PoK videos for #patients on #lymphatic #malformations and #KlippelTrenaunaysyndrome (#KTS)! 🎉Created by @HevasNederland + revised/validated by the #VascularAnomalies WG! ➡: vascern.eu/three-new-pills-o… #eHealth #treatment #elearning #ERNeu
Image from VASCERN (@vascern)
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VASCAPA_asbl retweeted
Juan Lage (@JuanLage) profile picture
Juan Lage@JuanLage11 Feb 2020
CC. @VASCAPA @vascern
V.A. Cure (@VACure1) profile pictureV.A. Cure@VACure111 Feb 2020
Department of Human Molecular Genetics in de Duve Institut supports #RareDiseaseDay ! Join us ! #VACure #ITN #VikkulaLab
Image from V.A. Cure (@VACure1)
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VASCAPA_asbl retweeted
VASCERN (@vascern) profile picture
VASCERN@vascern27 Nov 2019
Our Primary and Pediatric #lymphedema working group published their 1st #patientpathway bit.ly/2soM7DD cc @ManuelaLdelinfa @LymphaThe @lymfan
Image from VASCERN (@vascern)
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