The Wholehearted Advocate Motherhood. Advocate that’s funded by love NOT pharma. I just want pharma transparency O and transparency from those who take pharma💰
Ontario, Canada
Joined August 2013
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We all need trees to stay alive but for some children they need life saving medication. What is your plan to stop excessively priced drugs @GinettePT This is just about my daughter, it’s about our country.
It’s a sad day when we are losing a great leader @DougPMPRB I appreciate all of you hard work, dedication and integrity you have served with. @KCroweToronto
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This is extremely alarming and we should be extremely concerned if someone like @cmrherder is resigning.
💔
“The two most important days in your life are the day you were born, and the day you find out why. “
Mark Twain
Who knew my “why” would be all of this 💜 I have it all and more.
@GovCanHealth also seems to protect foundations that are heavily funded by @PhRMA or are they afraid of them???
Loving Selling Sickness by @AKECassels
I also think the recent @PMPRB_CEPMB delay is proof as to who the good old government is protecting.
Pharma grooms advocates and it’s time @GovCanHealth protects the people they serve. If they can’t advertise in 🇨🇦 they shouldn’t be allowed to teach caregivers/patients how to “be advocates.” #EndPharmaGrooming
Imagine if #RBG fought only for herself and left every other woman behind. She looked at the whole picture not just what she wanted. This is the problem in #RareDisease advocacy, everyone fighting for what they need and not thinking about what’s best for all. #EndPharmaGrooming
It would be wiser to invest in access to dental care. Education isn’t helpful if people can’t access the service. @DonDavies How much do we spend on programs like this when we could be investing in Universal Dental Coverage? We need to clean the teeth, not teach them why!!!
So grateful for people that are way smarter than me. Advocacy is about more than fighting for what you want/need, it’s about learning and fighting for everyone so we all get what we need. #raredisease #advocacy
Thanks @cmrherder @JEGanthro
How do you rebuild trust in the health care system when you have been so mistreated by doctors, policy makers and of course big pharma? I don’t know how. How do I know the good ones from the not so good ones? How do I trust again?
#GenuineQuestion @MaggieKeresteci
Erin Little retweeted
On climate change, but parallels the lobbying of @CanadianPM by #BigPharma, on drug #pricing controls:
“Almost every policy proposed to help..has been delayed or shelved b/c of the lobbying & influence of industry.”
theguardian.com/commentisfre…
@ColleenFuller @authenticallye @haronba
Please don’t forget about parents taking care of kids who are sick. We as parents don’t get support bc our child isn’t “sick enough.” Guess who keeps her healthy enough not to be sick enough? @AndreaHorwath
I do, her mother and caregiver
It’s time for Ontario to care for the caregivers.
I’m in Bay of Quinte today to announce an NDP government will help those who regularly help loved ones aging at home or living with a disability in their own home with a Caregiver Benefit Program. Please join me at 11AM. #onpoli
Erin Little retweeted
The #OriginsOfCovid controversy has muddled the definitions of two terms:
Conflicts of interest
Conspiracy theory
Insights from @DisInfoChron @thackerpd and @ianbirrell here:
disinformationchronicle.subs…
@kellygrant1 all these years later and we still have issues ensuring Olivia gets her medication.
@pritikrishtel Are you involved with this organization?
Just learned about this organization; thx @ElsTorreele. Coalition Against Patent Abuse aims to stop #BigPharma from gaming the system to extend monopolies at patients’ expense: capanow.org/
@haronba @ColleenFuller @jc_currie @authenticallye
@TerrieHendric17 @furlinil
Making our hospital reapply for her treatment is a waste of time on the administration & me, as her mother and #caregiver I am exhausted. I shouldn’t have to fight like this.
Maybe it’s time you start listening to the stories that are our lives so you can learn. @SolidFooting